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@ARTICLE{Volhard:139965,
author = {Volhard, Theresia and Jessen, Frank and Kleineidam, Luca
and Wolfsgruber, Steffen and Lanzerath, Dirk and Wagner,
Michael and Maier, Wolfgang},
title = {{A}dvance directives for future dementia can be modified by
a brief video presentation on dementia care: {A}n
experimental study.},
journal = {PLOS ONE},
volume = {13},
number = {5},
issn = {1932-6203},
address = {San Francisco, California, US},
publisher = {PLOS},
reportid = {DZNE-2020-06287},
pages = {e0197229},
year = {2018},
abstract = {To investigate whether life-sustaining measures in medical
emergency situations are less accepted for an anticipated
own future of living with dementia, and to test whether a
resource-oriented, in contrast to a deficit-oriented video
about the same demented person, would increase the
acceptance of such life-saving measures.Experimental study
conducted between September 2012 and February 2013.Community
dwelling female volunteers living in the region of Bonn,
Germany.278 women aged 19 to 89 (mean age 53.4
years).Presentation of a video on dementia care focusing
either on the deficits of a demented woman (negative
framing), or focusing on the remaining resources (positive
framing) of the same patient.Approval of life-sustaining
treatments in five critical medical scenarios under the
assumption of having comorbid dementia, before and after the
presentation of the brief videos on care.At baseline, the
acceptance of life-sustaining measures in critical medical
situations was significantly lower in subjects anticipating
their own future life with dementia. Participants watching
the resource-oriented film on living with dementia had
significantly higher post-film acceptance rates compared to
those watching the deficit-oriented negatively framed film.
This effect particularly emerges if brief and efficient
life-saving interventions with a high likelihood of physical
recovery are available (eg, antibiotic treatment for
pneumonia).Anticipated decisions regarding life-sustaining
measures are negatively influenced by the subjective
imagination of living with dementia, which might be shaped
by common, unquestioned stereotypes. This bias can be
reduced by providing audio-visual information on living with
dementia which is not only centred around cognitive and
functional losses but also focuses on remaining resources
and the apparent quality of life. This is particularly true
if the medical threat can be treated efficiently. These
findings have implications for the practice of formulating,
revising, and supporting advance directives.},
keywords = {Adult / Advance Directives: psychology / Aged / Aged, 80
and over / Anticipation, Psychological: ethics / Cognitive
Remediation: methods / Decision Making: ethics / Dementia:
physiopathology / Dementia: psychology / Female / Germany /
Humans / Independent Living / Middle Aged / Quality of Life:
psychology / Surveys and Questionnaires / Videotape
Recording},
cin = {AG Jessen / AG Wagner / U Clinical Researchers - Bonn},
ddc = {610},
cid = {I:(DE-2719)1011102 / I:(DE-2719)1011201 /
I:(DE-2719)7000001},
pnm = {344 - Clinical and Health Care Research (POF3-344)},
pid = {G:(DE-HGF)POF3-344},
typ = {PUB:(DE-HGF)16},
pubmed = {pmid:29795605},
pmc = {pmc:PMC5967707},
doi = {10.1371/journal.pone.0197229},
url = {https://pub.dzne.de/record/139965},
}