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@ARTICLE{Linse:140112,
      author       = {Linse, Katharina and Aust, Elisa and Joos, Markus and
                      Hermann, Andreas},
      title        = {{C}ommunication {M}atters-{P}itfalls and {P}romise of
                      {H}ightech {C}ommunication {D}evices in {P}alliative {C}are
                      of {S}everely {P}hysically {D}isabled {P}atients {W}ith
                      {A}myotrophic {L}ateral {S}clerosis.},
      journal      = {Frontiers in neurology},
      volume       = {9},
      issn         = {1664-2295},
      address      = {Lausanne},
      publisher    = {Frontiers Research Foundation},
      reportid     = {DZNE-2020-06434},
      pages        = {603},
      year         = {2018},
      abstract     = {Amyotrophic lateral sclerosis (ALS) is the most common
                      motor neuron disease, leading to progressive paralysis,
                      dysarthria, dysphagia, and respiratory disabilities. Therapy
                      is mostly focused on palliative interventions. During the
                      course of the disease, verbal as well as nonverbal
                      communicative abilities become more and more impaired. In
                      this light, communication has been argued to be 'the essence
                      of human life' and crucial for patients' quality of life.
                      High-tech augmentative and alternative communication
                      (HT-AAC) technologies such as eyetracking based computer
                      devices and brain-computer-interfaces provide the
                      possibility to maintain caregiver-independent communication
                      and environmental control even in the advanced disease state
                      of ALS. Thus, they enable patients to preserve social
                      participation and to independently communicate
                      end-of-life-decisions. In accordance with these functions of
                      HT-AAC, their use is reported to strengthen
                      self-determination, increase patients' quality of life and
                      reduce caregiver burden. Therefore, HT-AAC should be
                      considered as standard of (palliative) care for people with
                      ALS. On the other hand, the supply with individually
                      tailored HT-AAC technologies is limited by external and
                      patient-inherent variables. This review aims to provide an
                      overview of the possibilities and limitations of HT-AAC
                      technologies and discuss their role in the palliative care
                      for patients with ALS.},
      subtyp        = {Review Article},
      cin          = {AG Hermann / AG Teipel},
      ddc          = {610},
      cid          = {I:(DE-2719)1511100 / I:(DE-2719)1510100},
      pnm          = {344 - Clinical and Health Care Research (POF3-344)},
      pid          = {G:(DE-HGF)POF3-344},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:30100896},
      pmc          = {pmc:PMC6072854},
      doi          = {10.3389/fneur.2018.00603},
      url          = {https://pub.dzne.de/record/140112},
}