TY  - JOUR
AU  - Stacke, Tobias Ingo
AU  - Bergmann, Johannes Michael
AU  - Ströbel, Armin Michael
AU  - Müller-Widmer, René
AU  - Purwins, Daniel
AU  - Manietta, Christina
AU  - Rommerskirch, Mike
AU  - Nebowsky, Anna-Eva
AU  - Wegner, Anne
AU  - White, Jane
AU  - Kelleter, Heidemarie
AU  - Ralic, Nada
AU  - Van Haitsma, Kimberly
AU  - Roes, Martina
TI  - Preferences for everyday living inventory (PELI): study protocol for piloting a culture-sensitive and setting-specific translated instrument in German care settings (PELI-D).
JO  - Open Heart
VL  - 10
IS  - 1
SN  - 2044-6055
CY  - London
PB  - BMJ129080
M1  - DZNE-2020-00449
SP  - e030268
PY  - 2020
AB  - Regardless of the healthcare setting, person-centred care and its implementation in caring for older people are a central issue for those who are responsible as professional caregivers and for those in need of care within the care process. Both aspects encompass the possibility of recognising personal preferences. To provide person-centred care, professional caregivers need to know about the individual preferences of the persons being cared for. Therefore, the PELI (an acronym for 'Preferences for Everyday Living Inventory') instrument was developed at the Polisher Research Institute (USA) for the systematic recording of individual preferences of older people in need of care. There is currently no comparable instrument available in the German language.As part of the proposed project PELI-D, all versions of the original PELI instrument (nursing home version) were (1) culture-sensitively translated into German and will be (2) examined in a pilot study for their reliability, feasibility and practicability. For the project PELI-D, we worked together with our practice partners in Germany (Diaconia and Caritas in North Rhine-Westphalia) and collaborated with our partners in the USA who developed the PELI instrument. This study protocol focuses on the pilot study, which will be conducted by the German Center for Neurodegenerative Diseases (DZNE) (site Witten).This study was approved by the internal quality control committee of the DZNE (ID number: WI029 PELI-D) and by the ethics committee of the German Society of Nursing Science Duisburg branch office (ID number: 18-010). All personal information will be deidentified with a specific identification code and stored in a secured location apart from the rest of the study data. Only qualified and study-related staff will be allowed access to the data. The results of the study will be distributed nationally and internationally through peer-reviewed journals, conferences and journals for nursing care practice.
KW  - Activities of Daily Living: psychology
KW  - Aged
KW  - Cultural Competency
KW  - Feasibility Studies
KW  - Germany
KW  - Health Services Research
KW  - Health Services for the Aged
KW  - Humans
KW  - Nursing Homes
KW  - Patient Preference
KW  - Patient-Centered Care: methods
KW  - Pilot Projects
KW  - Surveys and Questionnaires
KW  - Translations
LB  - PUB:(DE-HGF)16
C6  - pmid:31915158
C2  - pmc:PMC6955533
DO  - DOI:10.1136/bmjopen-2019-030268
UR  - https://pub.dzne.de/record/145090
ER  -