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@ARTICLE{Stacke:145090,
author = {Stacke, Tobias Ingo and Bergmann, Johannes Michael and
Ströbel, Armin Michael and Müller-Widmer, René and
Purwins, Daniel and Manietta, Christina and Rommerskirch,
Mike and Nebowsky, Anna-Eva and Wegner, Anne and White, Jane
and Kelleter, Heidemarie and Ralic, Nada and Van Haitsma,
Kimberly and Roes, Martina},
title = {{P}references for everyday living inventory ({PELI}): study
protocol for piloting a culture-sensitive and
setting-specific translated instrument in {G}erman care
settings ({PELI}-{D}).},
journal = {Open Heart},
volume = {10},
number = {1},
issn = {2044-6055},
address = {London},
publisher = {BMJ129080},
reportid = {DZNE-2020-00449},
pages = {e030268},
year = {2020},
abstract = {Regardless of the healthcare setting, person-centred care
and its implementation in caring for older people are a
central issue for those who are responsible as professional
caregivers and for those in need of care within the care
process. Both aspects encompass the possibility of
recognising personal preferences. To provide person-centred
care, professional caregivers need to know about the
individual preferences of the persons being cared for.
Therefore, the PELI (an acronym for 'Preferences for
Everyday Living Inventory') instrument was developed at the
Polisher Research Institute (USA) for the systematic
recording of individual preferences of older people in need
of care. There is currently no comparable instrument
available in the German language.As part of the proposed
project PELI-D, all versions of the original PELI instrument
(nursing home version) were (1) culture-sensitively
translated into German and will be (2) examined in a pilot
study for their reliability, feasibility and practicability.
For the project PELI-D, we worked together with our practice
partners in Germany (Diaconia and Caritas in North
Rhine-Westphalia) and collaborated with our partners in the
USA who developed the PELI instrument. This study protocol
focuses on the pilot study, which will be conducted by the
German Center for Neurodegenerative Diseases (DZNE) (site
Witten).This study was approved by the internal quality
control committee of the DZNE (ID number: WI029 PELI-D) and
by the ethics committee of the German Society of Nursing
Science Duisburg branch office (ID number: 18-010). All
personal information will be deidentified with a specific
identification code and stored in a secured location apart
from the rest of the study data. Only qualified and
study-related staff will be allowed access to the data. The
results of the study will be distributed nationally and
internationally through peer-reviewed journals, conferences
and journals for nursing care practice.},
keywords = {Activities of Daily Living: psychology / Aged / Cultural
Competency / Feasibility Studies / Germany / Health Services
Research / Health Services for the Aged / Humans / Nursing
Homes / Patient Preference / Patient-Centered Care: methods
/ Pilot Projects / Surveys and Questionnaires /
Translations},
cin = {AG Roes / Wissensch. $\&$ stud. Hilfskräfte},
ddc = {610},
cid = {I:(DE-2719)1610003 / I:(DE-2719)1640001},
pnm = {344 - Clinical and Health Care Research (POF3-344)},
pid = {G:(DE-HGF)POF3-344},
typ = {PUB:(DE-HGF)16},
pubmed = {pmid:31915158},
pmc = {pmc:PMC6955533},
doi = {10.1136/bmjopen-2019-030268},
url = {https://pub.dzne.de/record/145090},
}