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@ARTICLE{Lhle:164651,
author = {Löhle, Matthias and Bremer, Alexander and Gandor, Florin
and Timpka, Jonathan and Odin, Per and Ebersbach, Georg and
Storch, Alexander},
title = {{V}alidation of the {PD} home diary for assessment of motor
fluctuations in advanced {P}arkinson’s disease},
journal = {npj Parkinson's Disease},
volume = {8},
issn = {2373-8057},
address = {London [u.a.]},
publisher = {Nature Publ. Group},
reportid = {DZNE-2022-01181},
pages = {69},
year = {2022},
note = {(CC BY)},
abstract = {The Parkinson’s disease (PD) home diary is frequently
used in clinical trials to measure efficacy of medical
treatments for motor fluctuations in advanced PD. This
prospective study in fluctuating PD patients examines the
validity of the diary for quantification of motor states in
comparison to direct clinical observation. 51 patients
(median age: 65 years, disease duration: 11 years) completed
the diary half-hourly for two consecutive days and were
simultaneously rated by an experienced observer, who
independently evaluated motor states half-hourly throughout
daytime. Overall agreement (Cohen’s kappa) between patient
and observer diary entries was $59.8\%$ (0.387). Patients
documented more On without dyskinesia $(52.3\%$ vs.
$38.9\%,$ P < 0.001) and less On with dyskinesia
$(21.5\%$ vs. $34.2\%,$ P < 0.001), whereas proportions
for Off intervals were not different between patient and
observer diaries $(26.2\%$ vs. $27.0\%,$ P = 0.97).
Temporal agreement between diary ratings was unsatisfactory,
particularly for On with dyskinesia. Taken together, our
study suggests that the PD home diary only inadequately
reflects actual motor states compared to direct clinical
observation.},
cin = {AG Teipel / AG Storch 2 Rostock},
ddc = {610},
cid = {I:(DE-2719)1510100 / I:(DE-2719)5000014},
pnm = {353 - Clinical and Health Care Research (POF4-353)},
pid = {G:(DE-HGF)POF4-353},
typ = {PUB:(DE-HGF)16},
pmc = {pmc:PMC9163037},
pubmed = {pmid:35654835},
doi = {10.1038/s41531-022-00331-w},
url = {https://pub.dzne.de/record/164651},
}