%0 Journal Article
%A Meyer, Thomas
%A Spittel, Susanne
%A Grehl, Torsten
%A Weyen, Ute
%A Steinbach, Robert
%A Kettemann, Dagmar
%A Petri, Susanne
%A Weydt, Patrick
%A Günther, René
%A Baum, Petra
%A Schlapakow, Elena
%A Koch, Jan Christoph
%A Boentert, Matthias
%A Wolf, Joachim
%A Grosskreutz, Julian
%A Rödiger, Annekathrin
%A Ilse, Benjamin
%A Metelmann, Moritz
%A Norden, Jenny
%A Koc, Ruhan Yasemin
%A Körtvelyessy, Peter
%A Riitano, Alessio
%A Walter, Bertram
%A Hildebrandt, Barbara
%A Schaudinn, Friedrich
%A Münch, Christoph
%A Maier, André
%T Remote digital assessment of amyotrophic lateral sclerosis functional rating scale - a multicenter observational study.
%J Amyotrophic lateral sclerosis & frontotemporal degeneration
%V 24
%N 3-4
%@ 1466-0822
%C Abingdon
%I Taylor Francis Group
%M DZNE-2022-01485
%P 175-184
%D 2023
%X  Remote self-assessment of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) using digital data capture was investigated for its feasibility as an add-on to ALSFRS-R assessments during multidisciplinary clinic visits.From August 2017 to December 2021, at 12 ALS centers in Germany, an observational study on remote assessment of the ALSFRS-R was performed. In addition to the assessment of ALSFRS-R during clinic visits, patients were offered a digital self-assessment of the ALSFRS-R - either on a computer or on a mobile application ('ALS-App').An estimated multicenter cohort of 4,670 ALS patients received care at participating ALS centers. Of these patients, 971 remotely submitted the ALSFRS-R, representing 21
%K Persons with Disabilities
%K Humans
%K Male
%K Female
%K Amyotrophic Lateral Sclerosis: diagnosis
%K Disabled Persons
%K Germany
%K Disease Progression
%K ALS-App (Other)
%K Amyotrophic lateral sclerosis (Other)
%K amyotrophic lateral sclerosis functional rating scale-revised (Other)
%K remote assessment (Other)
%K self-assessment (Other)
%F PUB:(DE-HGF)16
%9 Journal Article
%$ pmid:35912984
%R 10.1080/21678421.2022.2104649
%U https://pub.dzne.de/record/165183