TY  - JOUR
AU  - Meyer, Thomas
AU  - Spittel, Susanne
AU  - Grehl, Torsten
AU  - Weyen, Ute
AU  - Steinbach, Robert
AU  - Kettemann, Dagmar
AU  - Petri, Susanne
AU  - Weydt, Patrick
AU  - Günther, René
AU  - Baum, Petra
AU  - Schlapakow, Elena
AU  - Koch, Jan Christoph
AU  - Boentert, Matthias
AU  - Wolf, Joachim
AU  - Grosskreutz, Julian
AU  - Rödiger, Annekathrin
AU  - Ilse, Benjamin
AU  - Metelmann, Moritz
AU  - Norden, Jenny
AU  - Koc, Ruhan Yasemin
AU  - Körtvelyessy, Peter
AU  - Riitano, Alessio
AU  - Walter, Bertram
AU  - Hildebrandt, Barbara
AU  - Schaudinn, Friedrich
AU  - Münch, Christoph
AU  - Maier, André
TI  - Remote digital assessment of amyotrophic lateral sclerosis functional rating scale - a multicenter observational study.
JO  - Amyotrophic lateral sclerosis & frontotemporal degeneration
VL  - 24
IS  - 3-4
SN  - 1466-0822
CY  - Abingdon
PB  - Taylor Francis Group
M1  - DZNE-2022-01485
SP  - 175-184
PY  - 2023
AB  -  Remote self-assessment of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) using digital data capture was investigated for its feasibility as an add-on to ALSFRS-R assessments during multidisciplinary clinic visits.From August 2017 to December 2021, at 12 ALS centers in Germany, an observational study on remote assessment of the ALSFRS-R was performed. In addition to the assessment of ALSFRS-R during clinic visits, patients were offered a digital self-assessment of the ALSFRS-R - either on a computer or on a mobile application ('ALS-App').An estimated multicenter cohort of 4,670 ALS patients received care at participating ALS centers. Of these patients, 971 remotely submitted the ALSFRS-R, representing 21
KW  - Persons with Disabilities
KW  - Humans
KW  - Male
KW  - Female
KW  - Amyotrophic Lateral Sclerosis: diagnosis
KW  - Disabled Persons
KW  - Germany
KW  - Disease Progression
KW  - ALS-App (Other)
KW  - Amyotrophic lateral sclerosis (Other)
KW  - amyotrophic lateral sclerosis functional rating scale-revised (Other)
KW  - remote assessment (Other)
KW  - self-assessment (Other)
LB  - PUB:(DE-HGF)16
C6  - pmid:35912984
DO  - DOI:10.1080/21678421.2022.2104649
UR  - https://pub.dzne.de/record/165183
ER  -