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@INPROCEEDINGS{Scharf:169232,
      author       = {Scharf, Annelie and Rädke, Anika and Köhler, Stefanie and
                      Heppner, Marie Marleen and Purwins, Daniel and Roes, Martina
                      and Teipel, Stefan and Hoffmann, Wolfgang and Michalowsky,
                      Bernhard},
      title        = {{D}esign and implementation of the participatory {G}erman
                      network for translational dementia care research
                      ({T}a{ND}em) – {A} {Q}ualitative {S}tudy on the
                      {P}erspectives of {S}takeholders and {H}ealthcare
                      {P}roviders in {D}ementia {C}are {R}esearch},
      journal      = {Alzheimer's and dementia},
      volume       = {18},
      number       = {S9},
      issn         = {1552-5260},
      address      = {Hoboken, NJ},
      publisher    = {Wiley},
      reportid     = {DZNE-2023-00105},
      pages        = {e063086},
      year         = {2022},
      abstract     = {Currently, there is a lack of sustainable, translational
                      structures in dementia care research that enable a
                      nationally guided participatory interaction between
                      research, care practice, and those affected by dementia. A
                      close cooperation between research and care practice with a
                      simultaneous inclusion of those affected by dementia is
                      essential to translate scientific evidence into practice and
                      address routine care needs in healthcare research. Within
                      the project TaNDem we aim to close the gap between research
                      and practice by establishing a translational dementia care
                      research network with participatory elements. We interviewed
                      healthcare providers to identify their expectations for the
                      design and implementation of this network.MethodsWe
                      interviewed n = 87 stakeholders in healthcare practice and
                      healthcare research within focus group interviews. We
                      followed a structured interview guide including, questions
                      about (i) the main objectives and areas of such network,
                      (ii) the preferred way of coordination, collaboration, and
                      interaction, (iii) and barriers and facilitators of
                      implementation. The recorded interviews were transcribed and
                      analyzed using qualitative content analysis according to
                      Mayring.ResultsInterviewees expressed the desire for an
                      understandable translation of research results for
                      practitioners, for a strengthening of networking, and for
                      interaction between research and practice. Stakeholders
                      would like to see evaluations of healthcare situations in
                      specific geographic regions and the involvement of people
                      affected by dementia in research. Furthermore, they
                      preferred better communication between researchers and
                      practitioners, support in identifying suitable cooperation
                      partners, and a unified approach towards health policy.
                      According to collaboration, regional and national meetings
                      as well as communication channels could be implemented via
                      online platforms, databases, or local advisory hubs.
                      Obstacles mentioned include limitations in terms of staff,
                      budget and time of stakeholders, as well as regional
                      differences and duplicate structures. To successfully
                      implement the TaNDem network, there should be local contact
                      persons. Furthermore, the cooperation should be based on
                      trust and jointly defined objectives that add value to the
                      individual’s work of each member of the research
                      network.ConclusionThe results show that stakeholders in
                      healthcare practice and healthcare research have similar
                      expectations related to a participatory collaboration that
                      provides an added value to all participants.},
      organization  = {Alzheimer's Association International
                       Conference 2022,},
      cin          = {AG Hoffmann / AG Teipel / AG Roes / Wissensch. $\&$ stud.
                      Hilfskräfte},
      ddc          = {610},
      cid          = {I:(DE-2719)1510600 / I:(DE-2719)1510100 /
                      I:(DE-2719)1610003 / I:(DE-2719)1640001},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16 / PUB:(DE-HGF)8},
      pubmed       = {pmid:36537963},
      doi          = {10.1002/alz.063086},
      url          = {https://pub.dzne.de/record/169232},
}