TY  - JOUR
AU  - Grobe-Einsler, Marcus
AU  - Taheri Amin, Arian
AU  - Faber, Jennifer
AU  - Völkel, Hartmut
AU  - Synofzik, Matthis
AU  - Klockgether, Thomas
TI  - Scale for the Assessment and Rating of Ataxia (SARA): Development of a Training Tool and Certification Program.
JO  - The Cerebellum
VL  - 23
IS  - 3
SN  - 1473-4222
CY  - London
PB  - Dunitz
M1  - DZNE-2023-00392
SP  - 877 - 880
PY  - 2024
N1  - CC BY
AB  - Monitoring of disease severity is of great importance for treatment and management of clinical trials. The Scale for Assessment and Rating of Ataxia (SARA) is a frequently used, short and easily applicable clinical scale used to assess the severity of ataxia. The objective of our study was to develop a training and certification tool for the SARA. SARA scores were recorded according to a standardized protocol and rated by three clinical experts in consensus. Four hundred thirty-eight videos of 67 patients were included in the SARA training tool. The tutorial section demonstrates a complete SARA examination on a healthy control. In the training section, users can compare their ratings to consensus ratings and access a video library covering the complete SARA range. The tool also includes a section that allows optional certification. The SARA training tool provides comprehensive and standardized training material and certification to reduce variability in applying the SARA. Standardization aims to improve the quality of patient care and research in ataxia.
KW  - Humans
KW  - Ataxia: diagnosis
KW  - Ataxia: therapy
KW  - Certification: standards
KW  - Severity of Illness Index
KW  - Female
KW  - Male
KW  - Adult
KW  - Middle Aged
KW  - Ataxia (Other)
KW  - Certification (Other)
KW  - SARA (Other)
KW  - Training tool (Other)
LB  - PUB:(DE-HGF)16
C2  - pmc:PMC11102411
C6  - pmid:36922437
DO  - DOI:10.1007/s12311-023-01543-3
UR  - https://pub.dzne.de/record/257323
ER  -