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@ARTICLE{GrobeEinsler:257323,
      author       = {Grobe-Einsler, Marcus and Taheri Amin, Arian and Faber,
                      Jennifer and Völkel, Hartmut and Synofzik, Matthis and
                      Klockgether, Thomas},
      title        = {{S}cale for the {A}ssessment and {R}ating of {A}taxia
                      ({SARA}): {D}evelopment of a {T}raining {T}ool and
                      {C}ertification {P}rogram.},
      journal      = {The Cerebellum},
      volume       = {23},
      number       = {3},
      issn         = {1473-4222},
      address      = {London},
      publisher    = {Dunitz},
      reportid     = {DZNE-2023-00392},
      pages        = {877 - 880},
      year         = {2024},
      note         = {CC BY},
      abstract     = {Monitoring of disease severity is of great importance for
                      treatment and management of clinical trials. The Scale for
                      Assessment and Rating of Ataxia (SARA) is a frequently used,
                      short and easily applicable clinical scale used to assess
                      the severity of ataxia. The objective of our study was to
                      develop a training and certification tool for the SARA. SARA
                      scores were recorded according to a standardized protocol
                      and rated by three clinical experts in consensus. Four
                      hundred thirty-eight videos of 67 patients were included in
                      the SARA training tool. The tutorial section demonstrates a
                      complete SARA examination on a healthy control. In the
                      training section, users can compare their ratings to
                      consensus ratings and access a video library covering the
                      complete SARA range. The tool also includes a section that
                      allows optional certification. The SARA training tool
                      provides comprehensive and standardized training material
                      and certification to reduce variability in applying the
                      SARA. Standardization aims to improve the quality of patient
                      care and research in ataxia.},
      keywords     = {Humans / Ataxia: diagnosis / Ataxia: therapy /
                      Certification: standards / Severity of Illness Index /
                      Female / Male / Adult / Middle Aged / Ataxia (Other) /
                      Certification (Other) / SARA (Other) / Training tool
                      (Other)},
      cin          = {AG Klockgether / AG Spottke / Patient Studies Bonn /
                      Clinical Research Platform (CRP) / AG Gasser},
      ddc          = {610},
      cid          = {I:(DE-2719)1011001 / I:(DE-2719)1011103 /
                      I:(DE-2719)1011101 / I:(DE-2719)1011401 /
                      I:(DE-2719)1210000},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16},
      pmc          = {pmc:PMC11102411},
      pubmed       = {pmid:36922437},
      doi          = {10.1007/s12311-023-01543-3},
      url          = {https://pub.dzne.de/record/257323},
}