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001     257323
005     20240808173023.0
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037 _ _ |a DZNE-2023-00392
041 _ _ |a English
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100 1 _ |a Grobe-Einsler, Marcus
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245 _ _ |a Scale for the Assessment and Rating of Ataxia (SARA): Development of a Training Tool and Certification Program.
260 _ _ |a London
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520 _ _ |a Monitoring of disease severity is of great importance for treatment and management of clinical trials. The Scale for Assessment and Rating of Ataxia (SARA) is a frequently used, short and easily applicable clinical scale used to assess the severity of ataxia. The objective of our study was to develop a training and certification tool for the SARA. SARA scores were recorded according to a standardized protocol and rated by three clinical experts in consensus. Four hundred thirty-eight videos of 67 patients were included in the SARA training tool. The tutorial section demonstrates a complete SARA examination on a healthy control. In the training section, users can compare their ratings to consensus ratings and access a video library covering the complete SARA range. The tool also includes a section that allows optional certification. The SARA training tool provides comprehensive and standardized training material and certification to reduce variability in applying the SARA. Standardization aims to improve the quality of patient care and research in ataxia.
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650 _ 7 |a Ataxia
|2 Other
650 _ 7 |a Certification
|2 Other
650 _ 7 |a SARA
|2 Other
650 _ 7 |a Training tool
|2 Other
650 _ 2 |a Humans
|2 MeSH
650 _ 2 |a Ataxia: diagnosis
|2 MeSH
650 _ 2 |a Ataxia: therapy
|2 MeSH
650 _ 2 |a Certification: standards
|2 MeSH
650 _ 2 |a Severity of Illness Index
|2 MeSH
650 _ 2 |a Female
|2 MeSH
650 _ 2 |a Male
|2 MeSH
650 _ 2 |a Adult
|2 MeSH
650 _ 2 |a Middle Aged
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700 1 _ |a Taheri Amin, Arian
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700 1 _ |a Faber, Jennifer
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700 1 _ |a Völkel, Hartmut
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700 1 _ |a Synofzik, Matthis
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700 1 _ |a Klockgether, Thomas
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773 _ _ |a 10.1007/s12311-023-01543-3
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856 4 _ |u https://pub.dzne.de/record/257323/files/DZNE-2023-00392.pdf
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