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@ARTICLE{Lessing:258663,
      author       = {Lessing, Susanne and Deck, Ruth and Berwig, Martin},
      title        = {{T}elephone-based aftercare groups for family carers of
                      people with dementia - results of a mixed-methods process
                      evaluation of a randomized controlled trial.},
      journal      = {BMC health services research},
      volume       = {23},
      number       = {1},
      issn         = {1472-6963},
      address      = {London},
      publisher    = {BioMed Central},
      reportid     = {DZNE-2023-00636},
      pages        = {643},
      year         = {2023},
      abstract     = {Caring for a relative with dementia can be demanding and
                      time-consuming. It is not uncommon for them to be
                      overburdened and overworked, which can lead to symptoms of
                      depression or anxiety disorders in 2/3 of cases. One
                      possibility for treating family carers who have these issues
                      is special medical rehabilitation (rehab). However, studies
                      have shown that while such rehab is effective, it is not
                      sustainable. To increase the sustainability of rehab for
                      this target group, structured telephone-based aftercare
                      groups were implemented in the present study. A process
                      evaluation was conducted focusing on the acceptability of
                      the aftercare programme and its perceived benefits by the
                      participating family carers and group moderators.The process
                      evaluation was embedded in a longitudinal randomized
                      controlled trial and followed a mixed methods approach.
                      Quantitative process data were collected using protocols and
                      structured brief evaluations regarding the telephone-based
                      aftercare groups. To assess the acceptability of the
                      aftercare groups as well as their subjective evaluation by
                      the participants, qualitative process data were collected
                      through two longitudinal telephone-based interviews with a
                      subsample of family carers as well as a focus group
                      interview with the group moderators.Telephone-based
                      aftercare groups provide acceptable and supportive
                      experiences, and they are shown to be practicable. The
                      content structure and the procedure of the group sessions
                      could be easily implemented in everyday life after inpatient
                      rehab. The topics addressed with each patient were met with
                      a consistently positive response. Learning from the other
                      group members and sharing a bond based on the experience of
                      caring for a relative with dementia were evaluated as
                      positive outcomes in the group. The universality of
                      suffering as a central effective factor of group
                      psychotherapy also played a decisive role in this
                      telephone-based support group format for a shared bonding
                      and strengthening experience in the groups and thus for
                      their effectiveness.Telephone-based aftercare groups for
                      family carers of people with dementia are a useful and
                      acceptable tool in the context of rehab aftercare. This
                      location-independent aftercare programme could be adapted
                      for other indications, focuses or topics in everyday
                      care.German Clinical Trials Register: DRKS00013736,
                      14/05/2018.},
      keywords     = {Humans / Aftercare: methods / Caregivers / Dementia:
                      rehabilitation / Self-Help Groups / Telephone / Quality of
                      Life / Dementia (Other) / Family carers (Other) / Mixed
                      methods (Other) / Process evaluation (Other) /
                      Rehabilitation (Other) / Telephone-based aftercare groups
                      (Other)},
      cin          = {AG Halek},
      ddc          = {610},
      cid          = {I:(DE-2719)1610001},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:37322489},
      pmc          = {pmc:PMC10273544},
      doi          = {10.1186/s12913-023-09579-1},
      url          = {https://pub.dzne.de/record/258663},
}