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@ARTICLE{Berner:268791,
      author       = {Berner, Nora and Hohmann, Andreas and Yilmaz, Betuel and
                      Teupen, Sonja},
      title        = {{E}xperience of {Y}ounger-{O}nset {D}ementia {S}tigma:
                      {P}rotocol for a {C}onstructivist {G}rounded {T}heory
                      {S}tudy {B}ased on {Q}ualitative {E}pisodic {I}nterviews
                      {W}ith {P}eople {L}iving {W}ith {D}ementia and {T}heir
                      {S}ignificant {O}thers},
      journal      = {International journal of qualitative methods},
      volume       = {23},
      issn         = {1609-4069},
      address      = {London},
      publisher    = {Sage Publishing},
      reportid     = {DZNE-2024-00334},
      pages        = {16094069241232346},
      year         = {2024},
      abstract     = {Stigma based on younger-onset dementia (YOD) is a
                      significant challenge for individuals living with the
                      condition and their significant others (i.e., family and/or
                      friends) as well as for a society that aspires to be
                      inclusive, ensure social participation, and enable all
                      people to exercise their civil and human rights. The STELDA
                      study aims to develop a theoretical framework of YOD stigma
                      and stigmatization that is empirically grounded in the lived
                      experience of people living with younger-onset dementia
                      (PlwYOD) and their significant others and to identify ways
                      of counteracting YOD stigmatization processes in the
                      sociocultural context of Germany on a lifeworld level. The
                      research question is as follows: How do PlwYOD and their
                      adult significant others experience stigma and
                      stigmatization based on YOD in their lifeworlds, and what
                      implications do these experiences have for their actions in
                      their lifeworlds? The study is designed as a constructivist
                      grounded theory (CGT) study. Qualitative episodic interviews
                      with community-dwelling PlwYOD and their adult significant
                      others will be conducted to give participants the
                      opportunity to share their individual narratives and express
                      their subjective views. As an outcome, recommendations for
                      action will be developed for the public and for
                      professionals in diverse settings. On a methodological
                      level, novel insights will be gained regarding specific
                      issues related to qualitative research with PlwYOD and their
                      significant others.},
      cin          = {AG Teupen},
      ddc          = {050},
      cid          = {I:(DE-2719)5000076},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16},
      doi          = {10.1177/16094069241232346},
      url          = {https://pub.dzne.de/record/268791},
}