000275884 001__ 275884 000275884 005__ 20250115165654.0 000275884 0247_ $$2doi$$a10.1016/j.tjpad.2024.100015 000275884 0247_ $$2pmid$$apmid:39800459 000275884 0247_ $$2ISSN$$a2274-5807 000275884 0247_ $$2ISSN$$a2426-0266 000275884 037__ $$aDZNE-2025-00119 000275884 041__ $$aEnglish 000275884 082__ $$a610 000275884 1001_ $$aHandels, Ron$$b0 000275884 245__ $$aInformal care for people with dementia in Europe. 000275884 260__ $$aCham$$bSpringer International Publishing$$c2025 000275884 3367_ $$2DRIVER$$aarticle 000275884 3367_ $$2DataCite$$aOutput Types/Journal article 000275884 3367_ $$0PUB:(DE-HGF)16$$2PUB:(DE-HGF)$$aJournal Article$$bjournal$$mjournal$$s1736946935_19134 000275884 3367_ $$2BibTeX$$aARTICLE 000275884 3367_ $$2ORCID$$aJOURNAL_ARTICLE 000275884 3367_ $$00$$2EndNote$$aJournal Article 000275884 520__ $$aInformal care estimates for use in health-economic models are lacking. We aimed to estimate the association between informal care time and dementia symptoms across Europe.A secondary analysis was performed on 13,529 observations in 5,369 persons from 9 European pooled cohort or trial studies in community-dwelling persons with dementia. A mixed regression model was fitted to time spent on instrumental or basic activities of daily living using disease severity and demographic characteristics.Daily informal care time was 0.5 hours higher in moderate compared to mild and 1.3h higher in severe compared to mild cognitive impairment. Likewise, this was 1.2h and 2.7h for functional disability and 0.3h and 0.6h for behavioral symptoms in the same directions.Estimates can be used in both single- and multi-domain health-economic models for dementia in European settings. 000275884 536__ $$0G:(DE-HGF)POF4-353$$a353 - Clinical and Health Care Research (POF4-353)$$cPOF4-353$$fPOF IV$$x0 000275884 588__ $$aDataset connected to CrossRef, PubMed, , Journals: pub.dzne.de 000275884 650_7 $$2Other$$aDementia 000275884 650_7 $$2Other$$acosts 000275884 650_7 $$2Other$$ahealth-economic evaluation 000275884 650_7 $$2Other$$ainformal care 000275884 650_7 $$2Other$$aresource use 000275884 650_2 $$2MeSH$$aHumans 000275884 650_2 $$2MeSH$$aDementia: epidemiology 000275884 650_2 $$2MeSH$$aEurope: epidemiology 000275884 650_2 $$2MeSH$$aFemale 000275884 650_2 $$2MeSH$$aMale 000275884 650_2 $$2MeSH$$aActivities of Daily Living 000275884 650_2 $$2MeSH$$aAged 000275884 650_2 $$2MeSH$$aCaregivers 000275884 650_2 $$2MeSH$$aAged, 80 and over 000275884 650_2 $$2MeSH$$aCognitive Dysfunction 000275884 650_2 $$2MeSH$$aIndependent Living 000275884 650_2 $$2MeSH$$aSeverity of Illness Index 000275884 650_2 $$2MeSH$$aPatient Care 000275884 7001_ $$aHataiyusuk, Somboon$$b1 000275884 7001_ $$aWimo, Anders$$b2 000275884 7001_ $$aSköldunger, Anders$$b3 000275884 7001_ $$aBakker, Christian$$b4 000275884 7001_ $$aBieber, Anja$$b5 000275884 7001_ $$aCiccone, Alfonso$$b6 000275884 7001_ $$aDefanti, Carlo Alberto$$b7 000275884 7001_ $$aFabbo, Andrea$$b8 000275884 7001_ $$aFascendini, Sara$$b9 000275884 7001_ $$aFrölich, Lutz$$b10 000275884 7001_ $$aGervès-Pinquié, Chloé$$b11 000275884 7001_ $$aGonçalves-Pereira, Manuel$$b12 000275884 7001_ $$aIrving, Kate$$b13 000275884 7001_ $$aKoopmans, Raymond$$b14 000275884 7001_ $$aMecocci, Patrizia$$b15 000275884 7001_ $$aMerlo, Paola$$b16 000275884 7001_ $$0P:(DE-2719)2810763$$aMichalowsky, Bernhard$$b17$$udzne 000275884 7001_ $$0P:(DE-2719)2811024$$aPeters, Oliver$$b18$$udzne 000275884 7001_ $$aPijnenburg, Yolande$$b19 000275884 7001_ $$aRibeiro, Óscar$$b20 000275884 7001_ $$aSalbaek, Geir$$b21 000275884 7001_ $$aSchwarzkopf, Larissa$$b22 000275884 7001_ $$aVerbeek, Hilde$$b23 000275884 7001_ $$ade Vugt, Marjolein$$b24 000275884 7001_ $$aWoods, Bob$$b25 000275884 7001_ $$aZanetti, Orazio$$b26 000275884 7001_ $$aWinblad, Bengt$$b27 000275884 7001_ $$aJönsson, Linus$$b28 000275884 7001_ $$aActifcare consortium, ICTUS/DSA group, PLASA/DSA group, RECAGE consortium, RightTimePlaceCare consortium$$b29$$eCollaboration Author 000275884 773__ $$0PERI:(DE-600)2782183-3$$a10.1016/j.tjpad.2024.100015$$gVol. 12, no. 1, p. 100015 -$$n1$$p100015$$tThe journal of prevention of Alzheimer's disease$$v12$$x2274-5807$$y2025 000275884 8564_ $$uhttps://pub.dzne.de/record/275884/files/DZNE-2025-00119%20SUP.docx 000275884 8564_ $$uhttps://pub.dzne.de/record/275884/files/DZNE-2025-00119.pdf$$yOpenAccess 000275884 8564_ $$uhttps://pub.dzne.de/record/275884/files/DZNE-2025-00119%20SUP.doc 000275884 8564_ $$uhttps://pub.dzne.de/record/275884/files/DZNE-2025-00119%20SUP.odt 000275884 8564_ $$uhttps://pub.dzne.de/record/275884/files/DZNE-2025-00119%20SUP.pdf 000275884 8564_ $$uhttps://pub.dzne.de/record/275884/files/DZNE-2025-00119.pdf?subformat=pdfa$$xpdfa$$yOpenAccess 000275884 909CO $$ooai:pub.dzne.de:275884$$popenaire$$popen_access$$pVDB$$pdriver$$pdnbdelivery 000275884 9101_ $$0I:(DE-588)1065079516$$6P:(DE-2719)2810763$$aDeutsches Zentrum für Neurodegenerative Erkrankungen$$b17$$kDZNE 000275884 9101_ $$0I:(DE-HGF)0$$6P:(DE-2719)2811024$$aExternal Institute$$b18$$kExtern 000275884 9131_ $$0G:(DE-HGF)POF4-353$$1G:(DE-HGF)POF4-350$$2G:(DE-HGF)POF4-300$$3G:(DE-HGF)POF4$$4G:(DE-HGF)POF$$aDE-HGF$$bGesundheit$$lNeurodegenerative Diseases$$vClinical and Health Care Research$$x0 000275884 9141_ $$y2025 000275884 915__ $$0StatID:(DE-HGF)0200$$2StatID$$aDBCoverage$$bSCOPUS$$d2024-12-05 000275884 915__ $$0StatID:(DE-HGF)0300$$2StatID$$aDBCoverage$$bMedline$$d2024-12-05 000275884 915__ $$0LIC:(DE-HGF)CCBY4$$2HGFVOC$$aCreative Commons Attribution CC BY 4.0 000275884 915__ $$0StatID:(DE-HGF)0100$$2StatID$$aJCR$$bJPAD-J PREV ALZHEIM : 2022$$d2024-12-05 000275884 915__ $$0StatID:(DE-HGF)0113$$2StatID$$aWoS$$bScience Citation Index Expanded$$d2024-12-05 000275884 915__ $$0StatID:(DE-HGF)3002$$2StatID$$aDEAL Springer$$d2024-12-05$$wger 000275884 915__ $$0StatID:(DE-HGF)0150$$2StatID$$aDBCoverage$$bWeb of Science Core Collection$$d2024-12-05 000275884 915__ $$0StatID:(DE-HGF)0510$$2StatID$$aOpenAccess 000275884 915__ $$0StatID:(DE-HGF)9905$$2StatID$$aIF >= 5$$bJPAD-J PREV ALZHEIM : 2022$$d2024-12-05 000275884 915__ $$0StatID:(DE-HGF)0160$$2StatID$$aDBCoverage$$bEssential Science Indicators$$d2024-12-05 000275884 915__ $$0StatID:(DE-HGF)1110$$2StatID$$aDBCoverage$$bCurrent Contents - Clinical Medicine$$d2024-12-05 000275884 915__ $$0StatID:(DE-HGF)0199$$2StatID$$aDBCoverage$$bClarivate Analytics Master Journal List$$d2024-12-05 000275884 9201_ $$0I:(DE-2719)5000067$$kAG Michalowsky$$lPatient-Reported Outcomes and Health Economics Research$$x0 000275884 980__ $$ajournal 000275884 980__ $$aVDB 000275884 980__ $$aUNRESTRICTED 000275884 980__ $$aI:(DE-2719)5000067 000275884 9801_ $$aFullTexts