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@ARTICLE{Handels:275884,
      author       = {Handels, Ron and Hataiyusuk, Somboon and Wimo, Anders and
                      Sköldunger, Anders and Bakker, Christian and Bieber, Anja
                      and Ciccone, Alfonso and Defanti, Carlo Alberto and Fabbo,
                      Andrea and Fascendini, Sara and Frölich, Lutz and
                      Gervès-Pinquié, Chloé and Gonçalves-Pereira, Manuel and
                      Irving, Kate and Koopmans, Raymond and Mecocci, Patrizia and
                      Merlo, Paola and Michalowsky, Bernhard and Peters, Oliver
                      and Pijnenburg, Yolande and Ribeiro, Óscar and Salbaek,
                      Geir and Schwarzkopf, Larissa and Verbeek, Hilde and de
                      Vugt, Marjolein and Woods, Bob and Zanetti, Orazio and
                      Winblad, Bengt and Jönsson, Linus},
      collaboration = {Actifcare consortium, ICTUS/DSA group, PLASA/DSA group,
                      RECAGE consortium, RightTimePlaceCare consortium},
      title        = {{I}nformal care for people with dementia in {E}urope.},
      journal      = {The journal of prevention of Alzheimer's disease},
      volume       = {12},
      number       = {1},
      issn         = {2274-5807},
      address      = {Cham},
      publisher    = {Springer International Publishing},
      reportid     = {DZNE-2025-00119},
      pages        = {100015},
      year         = {2025},
      abstract     = {Informal care estimates for use in health-economic models
                      are lacking. We aimed to estimate the association between
                      informal care time and dementia symptoms across Europe.A
                      secondary analysis was performed on 13,529 observations in
                      5,369 persons from 9 European pooled cohort or trial studies
                      in community-dwelling persons with dementia. A mixed
                      regression model was fitted to time spent on instrumental or
                      basic activities of daily living using disease severity and
                      demographic characteristics.Daily informal care time was 0.5
                      hours higher in moderate compared to mild and 1.3h higher in
                      severe compared to mild cognitive impairment. Likewise, this
                      was 1.2h and 2.7h for functional disability and 0.3h and
                      0.6h for behavioral symptoms in the same
                      directions.Estimates can be used in both single- and
                      multi-domain health-economic models for dementia in European
                      settings.},
      keywords     = {Humans / Dementia: epidemiology / Europe: epidemiology /
                      Female / Male / Activities of Daily Living / Aged /
                      Caregivers / Aged, 80 and over / Cognitive Dysfunction /
                      Independent Living / Severity of Illness Index / Patient
                      Care / Dementia (Other) / costs (Other) / health-economic
                      evaluation (Other) / informal care (Other) / resource use
                      (Other)},
      cin          = {AG Michalowsky},
      ddc          = {610},
      cid          = {I:(DE-2719)5000067},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:39800459},
      doi          = {10.1016/j.tjpad.2024.100015},
      url          = {https://pub.dzne.de/record/275884},
}