%0 Journal Article
%A Röttgen, Sinah
%A Schäffer, Eva
%A Rogge, Annette
%A Hartung, Ramona
%A Kufer, Konstantin
%A Fink, Gereon R
%A Berg, Daniela
%A Ophey, Anja
%A Sommerauer, Michael
%T The prodromal individuals' perspective on active recruitment for early detection of α-synucleinopathies.
%J npj Parkinson's Disease
%V 11
%N 1
%@ 2373-8057
%C [London]
%I Springer Nature
%M DZNE-2025-00600
%P 121
%D 2025
%X Only the timely detection of individuals with incipient α-synucleinopathies can pave the way for developing disease-modifying therapies. Our aim was to explore the views of individuals with isolated REM sleep behavior disorder (iRBD), actively recruited from the general population, on the ethical justifiability of active recruitment and their experiences with risk disclosure. This mixed-methods study surveyed individuals with iRBD, confirmed by video-polysomnography, utilizing an interdisciplinary-developed online questionnaire. Of 99 invited individuals, 75 (75.8
%F PUB:(DE-HGF)16
%9 Journal Article
%$ pmid:40346062
%2 pmc:PMC12064827
%R 10.1038/s41531-025-00979-0
%U https://pub.dzne.de/record/278567