TY  - JOUR
AU  - Röttgen, Sinah
AU  - Schäffer, Eva
AU  - Rogge, Annette
AU  - Hartung, Ramona
AU  - Kufer, Konstantin
AU  - Fink, Gereon R
AU  - Berg, Daniela
AU  - Ophey, Anja
AU  - Sommerauer, Michael
TI  - The prodromal individuals' perspective on active recruitment for early detection of α-synucleinopathies.
JO  - npj Parkinson's Disease
VL  - 11
IS  - 1
SN  - 2373-8057
CY  - [London]
PB  - Springer Nature
M1  - DZNE-2025-00600
SP  - 121
PY  - 2025
AB  - Only the timely detection of individuals with incipient α-synucleinopathies can pave the way for developing disease-modifying therapies. Our aim was to explore the views of individuals with isolated REM sleep behavior disorder (iRBD), actively recruited from the general population, on the ethical justifiability of active recruitment and their experiences with risk disclosure. This mixed-methods study surveyed individuals with iRBD, confirmed by video-polysomnography, utilizing an interdisciplinary-developed online questionnaire. Of 99 invited individuals, 75 (75.8
LB  - PUB:(DE-HGF)16
C6  - pmid:40346062
C2  - pmc:PMC12064827
DO  - DOI:10.1038/s41531-025-00979-0
UR  - https://pub.dzne.de/record/278567
ER  -