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000280239 0247_ $$2ISSN$$a0044-281X
000280239 0247_ $$2ISSN$$a1435-1269
000280239 037__ $$aDZNE-2025-00917
000280239 041__ $$aGerman
000280239 082__ $$a150
000280239 1001_ $$aHüer, Theresa$$b0
000280239 245__ $$aAlzheimer-Demenz bei Menschen mit einem Down-Syndrom : Ergebnisse leitfadengestützter Expert:inneninterviews zu Versorgungsdefiziten in Diagnostik und Therapie sowie Lösungsansätzen | Alzheimer's dementia in people with Down syndrome : Results of guideline-assisted expert interviews on healthcare deficits in the diagnostics and treatment as well as solution approaches
000280239 260__ $$aHeidelberg$$bSpringer Medizin$$c2025
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000280239 520__ $$aPeople with Down syndrome have a genetically increased risk of developing early onset Alzheimer's dementia. An interview study with healthcare providers, patient representatives and employees in residential and work facilities was conducted to identify deficits in the healthcare process and approaches to overcoming them.In this study 14 semi-structured interviews were conducted and analyzed using qualitative content analysis.A lack of knowledge and experience on the part of medical service providers in dealing with and providing medical care for people with Down syndrome was identified as a key challenge. In addition, the diagnosis of dementia in people with Down syndrome is difficult for various reasons (including lack of appropriate diagnostic tools in standard care and lack of time or financial resources). Doubts were expressed about the efficacy of antidementia medications and the reasons for the increased use of sedatives were discussed. Attentive observation of behavior and involvement of caregivers, regular review and reduction of polypharmacy and the use of alternative behavior modification techniques were mentioned as possible solutions.The identified deficits in the medical care of the target population and the approaches to solving them will be incorporated into the development of health policy recommendations in order to optimize the care situation of those affected in the long term.
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000280239 650_7 $$2Other$$aInterview study
000280239 650_7 $$2Other$$aMedical care
000280239 650_7 $$2Other$$aMedical care deficits
000280239 650_7 $$2Other$$aSolution approaches
000280239 650_7 $$2Other$$aTrisomy 21
000280239 650_2 $$2MeSH$$aHumans
000280239 650_2 $$2MeSH$$aAlzheimer Disease: diagnosis
000280239 650_2 $$2MeSH$$aAlzheimer Disease: therapy
000280239 650_2 $$2MeSH$$aAlzheimer Disease: epidemiology
000280239 650_2 $$2MeSH$$aDown Syndrome: diagnosis
000280239 650_2 $$2MeSH$$aDown Syndrome: therapy
000280239 650_2 $$2MeSH$$aDown Syndrome: epidemiology
000280239 650_2 $$2MeSH$$aGermany: epidemiology
000280239 650_2 $$2MeSH$$aMale
000280239 650_2 $$2MeSH$$aFemale
000280239 650_2 $$2MeSH$$aPractice Guidelines as Topic
000280239 650_2 $$2MeSH$$aAged
000280239 650_2 $$2MeSH$$aGuideline Adherence: statistics & numerical data
000280239 650_2 $$2MeSH$$aMiddle Aged
000280239 650_2 $$2MeSH$$aComorbidity
000280239 7001_ $$aWeitzel, Milena$$b1
000280239 7001_ $$aGiebel, Godwin Denk$$b2
000280239 7001_ $$aRaszke, Pascal$$b3
000280239 7001_ $$aWasem, Jürgen$$b4
000280239 7001_ $$0P:(DE-2719)2811659$$aLevin, Johannes$$b5$$udzne
000280239 7001_ $$0P:(DE-2719)9001761$$aNübling, Georg$$b6$$udzne
000280239 7001_ $$0P:(DE-2719)9001249$$aWagemann, Olivia$$b7$$udzne
000280239 7001_ $$aWlasich, Elisabeth$$b8
000280239 7001_ $$aPantel, Johannes$$b9
000280239 7001_ $$aTesky, Valentina$$b10
000280239 7001_ $$aSchall, Arthur$$b11
000280239 7001_ $$aWalendzik, Anke$$b12
000280239 773__ $$0PERI:(DE-600)1463317-6$$a10.1007/s00391-024-02371-8$$gVol. 58, no. 5, p. 397 - 404$$n5$$p397 - 404$$tZeitschrift für Gerontologie und Geriatrie$$v58$$x0948-6704$$y2025
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