TY  - JOUR
AU  - Koh, Wei Qi
AU  - Roes, Martina
AU  - de Vugt, Marjolein
AU  - Sezgin, Duygu
AU  - Gonçalves-Pereira, Manuel
AU  - Müller, Nicole
AU  - Diaz, Ana
AU  - Casey, Dympna
AU  - Ingram, Chantal
AU  - Walden, Amy Kate
AU  - Thyrian, Jochen Rene
AU  - Neal, David
AU  - Comas, Adelina
AU  - Hopper, Louise
TI  - What are the unmet needs in people affected by dementia? A scoping review of reviews.
JO  - Aging & mental health
VL  - 29
IS  - 11
SN  - 1360-7863
CY  - London [u.a.]
PB  - Taylor & Francis Group
M1  - DZNE-2025-01233
SP  - 1943 - 1966
PY  - 2025
AB  - To examine through a social health lens the unmet needs of people affected by dementia, which includes people with dementia, their informal and formal (or professional) caregivers. 'Unmet needs' was conceptualised as inaccessible or a lack of appropriate interventions to address identified problems.A scoping review of reviews was conducted. Five electronic databases were searched, followed by a two-stage-screening process. Data were extracted into a standardised sheet comprising study characteristics and domains from the Camberwell Assessment of Needs for the Elderly (CANE), and narratively synthesised. Unmet needs of people with dementia were mapped onto a social health framework.Eighty-five reviews were included. The most frequently reported unmet needs of people with dementia were related to psychological distress, lack of daytime activities, and company, all of which contribute to poorer social health. Informal caregivers most frequently reported a lack of information about the disease trajectory, post-diagnostic care, and home-based practical support. Formal caregivers had related information needs; their psychological distress stemmed from a range of sources.This review of reviews provides a high-level synthesis of the unmet needs of people affected by dementia. It underscores fundamental knowledge gaps and shortcomings in existing interventions and services particularly for formal and informal caregivers.
KW  - Humans
KW  - Dementia: psychology
KW  - Dementia: therapy
KW  - Caregivers: psychology
KW  - Health Services Needs and Demand
KW  - Needs Assessment
KW  - Aged
KW  - Dementia (Other)
KW  - inequity (Other)
KW  - scoping review (Other)
KW  - social health (Other)
KW  - unmet needs (Other)
LB  - PUB:(DE-HGF)16
C6  - pmid:40696903
DO  - DOI:10.1080/13607863.2025.2534406
UR  - https://pub.dzne.de/record/281860
ER  -