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@ARTICLE{Koh:281860,
      author       = {Koh, Wei Qi and Roes, Martina and de Vugt, Marjolein and
                      Sezgin, Duygu and Gonçalves-Pereira, Manuel and Müller,
                      Nicole and Diaz, Ana and Casey, Dympna and Ingram, Chantal
                      and Walden, Amy Kate and Thyrian, Jochen Rene and Neal,
                      David and Comas, Adelina and Hopper, Louise},
      title        = {{W}hat are the unmet needs in people affected by dementia?
                      {A} scoping review of reviews.},
      journal      = {Aging $\&$ mental health},
      volume       = {29},
      number       = {11},
      issn         = {1360-7863},
      address      = {London [u.a.]},
      publisher    = {Taylor $\&$ Francis Group},
      reportid     = {DZNE-2025-01233},
      pages        = {1943 - 1966},
      year         = {2025},
      abstract     = {To examine through a social health lens the unmet needs of
                      people affected by dementia, which includes people with
                      dementia, their informal and formal (or professional)
                      caregivers. 'Unmet needs' was conceptualised as inaccessible
                      or a lack of appropriate interventions to address identified
                      problems.A scoping review of reviews was conducted. Five
                      electronic databases were searched, followed by a
                      two-stage-screening process. Data were extracted into a
                      standardised sheet comprising study characteristics and
                      domains from the Camberwell Assessment of Needs for the
                      Elderly (CANE), and narratively synthesised. Unmet needs of
                      people with dementia were mapped onto a social health
                      framework.Eighty-five reviews were included. The most
                      frequently reported unmet needs of people with dementia were
                      related to psychological distress, lack of daytime
                      activities, and company, all of which contribute to poorer
                      social health. Informal caregivers most frequently reported
                      a lack of information about the disease trajectory,
                      post-diagnostic care, and home-based practical support.
                      Formal caregivers had related information needs; their
                      psychological distress stemmed from a range of sources.This
                      review of reviews provides a high-level synthesis of the
                      unmet needs of people affected by dementia. It underscores
                      fundamental knowledge gaps and shortcomings in existing
                      interventions and services particularly for formal and
                      informal caregivers.},
      keywords     = {Humans / Dementia: psychology / Dementia: therapy /
                      Caregivers: psychology / Health Services Needs and Demand /
                      Needs Assessment / Aged / Dementia (Other) / inequity
                      (Other) / scoping review (Other) / social health (Other) /
                      unmet needs (Other)},
      cin          = {AG Roes},
      ddc          = {150},
      cid          = {I:(DE-2719)1610003},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:40696903},
      doi          = {10.1080/13607863.2025.2534406},
      url          = {https://pub.dzne.de/record/281860},
}