%0 Journal Article
%A Rackoll, Torsten
%A Ketzer, André
%A Peppmeier, Bernd
%A Engel, Anna
%A Endres, Matthias
%A Nave, Alexander H
%T Patient perspective and research prioritization in rehabilitation after stroke - results from an online survey in Germany.
%J BMC health services research
%V 25
%N 1
%@ 1472-6963
%C London
%I BioMed Central
%M DZNE-2025-01339
%P 1564
%D 2025
%X People with lived experience (pwle) of stroke including survivors and informal caregivers offer critical insights into research needs. This study aimed to identify stroke rehabilitation research priorities in Germany from the perspective of pwle, and to explore variation by age, sex, and time since stroke.A cross-sectional, web-based survey was conducted nationwide in Germany. The survey included closed- and open-ended questions and was distributed via stroke support organizations, clinical partners, and previous study networks. Responses were analyzed descriptively.A total of 470 individuals responded, including 305 stroke survivors and 133 informal caregivers. The most frequently selected research priorities were cognition and mobility. Participants aged ≤ 65 years emphasized cognition, while older participants more often prioritized mobility and speech. Women more frequently selected cognition, and men mobility. Participants with longer time since stroke emphasized secondary prevention. Open-text responses identified additional priorities, including social participation, sexuality, and the need for individualized therapy approaches. A small subgroup of caregivers of pediatric stroke survivors prioritized cognition, participation, and self-care. Overall, 75
%K Humans
%K Male
%K Female
%K Germany
%K Stroke Rehabilitation
%K Aged
%K Cross-Sectional Studies
%K Middle Aged
%K Adult
%K Surveys and Questionnaires
%K Caregivers: psychology
%K Aged, 80 and over
%K Stroke: psychology
%K Internet
%K Rehabilitation Research
%K Caregivers (Other)
%K Germany (Other)
%K Lived experience (Other)
%K Patient engagement (Other)
%K Rehabilitation (Other)
%K Research priorities (Other)
%K Stroke (Other)
%K Survey (Other)
%F PUB:(DE-HGF)16
%9 Journal Article
%$ pmid:41310672
%2 pmc:PMC12670788
%R 10.1186/s12913-025-13824-0
%U https://pub.dzne.de/record/282579