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000282579 1001_ $$aRackoll, Torsten$$b0
000282579 245__ $$aPatient perspective and research prioritization in rehabilitation after stroke - results from an online survey in Germany.
000282579 260__ $$aLondon$$bBioMed Central$$c2025
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000282579 520__ $$aPeople with lived experience (pwle) of stroke including survivors and informal caregivers offer critical insights into research needs. This study aimed to identify stroke rehabilitation research priorities in Germany from the perspective of pwle, and to explore variation by age, sex, and time since stroke.A cross-sectional, web-based survey was conducted nationwide in Germany. The survey included closed- and open-ended questions and was distributed via stroke support organizations, clinical partners, and previous study networks. Responses were analyzed descriptively.A total of 470 individuals responded, including 305 stroke survivors and 133 informal caregivers. The most frequently selected research priorities were cognition and mobility. Participants aged ≤ 65 years emphasized cognition, while older participants more often prioritized mobility and speech. Women more frequently selected cognition, and men mobility. Participants with longer time since stroke emphasized secondary prevention. Open-text responses identified additional priorities, including social participation, sexuality, and the need for individualized therapy approaches. A small subgroup of caregivers of pediatric stroke survivors prioritized cognition, participation, and self-care. Overall, 75% of respondents expressed interest to be engaged in future research.Cognition and mobility were selected as key research priorities, with meaningful variation across demographic and clinical subgroups. These findings support the inclusion of diverse pwle perspectives in shaping national stroke research agendas and underscore the importance of tailoring rehabilitation research to stakeholder-identified needs.Not applicable.
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000282579 650_7 $$2Other$$aCaregivers
000282579 650_7 $$2Other$$aGermany
000282579 650_7 $$2Other$$aLived experience
000282579 650_7 $$2Other$$aPatient engagement
000282579 650_7 $$2Other$$aRehabilitation
000282579 650_7 $$2Other$$aResearch priorities
000282579 650_7 $$2Other$$aStroke
000282579 650_7 $$2Other$$aSurvey
000282579 650_2 $$2MeSH$$aHumans
000282579 650_2 $$2MeSH$$aMale
000282579 650_2 $$2MeSH$$aFemale
000282579 650_2 $$2MeSH$$aGermany
000282579 650_2 $$2MeSH$$aStroke Rehabilitation
000282579 650_2 $$2MeSH$$aAged
000282579 650_2 $$2MeSH$$aCross-Sectional Studies
000282579 650_2 $$2MeSH$$aMiddle Aged
000282579 650_2 $$2MeSH$$aAdult
000282579 650_2 $$2MeSH$$aSurveys and Questionnaires
000282579 650_2 $$2MeSH$$aCaregivers: psychology
000282579 650_2 $$2MeSH$$aAged, 80 and over
000282579 650_2 $$2MeSH$$aStroke: psychology
000282579 650_2 $$2MeSH$$aInternet
000282579 650_2 $$2MeSH$$aRehabilitation Research
000282579 7001_ $$aKetzer, André$$b1
000282579 7001_ $$aPeppmeier, Bernd$$b2
000282579 7001_ $$aEngel, Anna$$b3
000282579 7001_ $$0P:(DE-2719)2811033$$aEndres, Matthias$$b4$$udzne
000282579 7001_ $$aNave, Alexander H$$b5
000282579 773__ $$0PERI:(DE-600)2050434-2$$a10.1186/s12913-025-13824-0$$gVol. 25, no. 1, p. 1564$$n1$$p1564$$tBMC health services research$$v25$$x1472-6963$$y2025
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