TY  - JOUR
AU  - Rackoll, Torsten
AU  - Ketzer, André
AU  - Peppmeier, Bernd
AU  - Engel, Anna
AU  - Endres, Matthias
AU  - Nave, Alexander H
TI  - Patient perspective and research prioritization in rehabilitation after stroke - results from an online survey in Germany.
JO  - BMC health services research
VL  - 25
IS  - 1
SN  - 1472-6963
CY  - London
PB  - BioMed Central
M1  - DZNE-2025-01339
SP  - 1564
PY  - 2025
AB  - People with lived experience (pwle) of stroke including survivors and informal caregivers offer critical insights into research needs. This study aimed to identify stroke rehabilitation research priorities in Germany from the perspective of pwle, and to explore variation by age, sex, and time since stroke.A cross-sectional, web-based survey was conducted nationwide in Germany. The survey included closed- and open-ended questions and was distributed via stroke support organizations, clinical partners, and previous study networks. Responses were analyzed descriptively.A total of 470 individuals responded, including 305 stroke survivors and 133 informal caregivers. The most frequently selected research priorities were cognition and mobility. Participants aged ≤ 65 years emphasized cognition, while older participants more often prioritized mobility and speech. Women more frequently selected cognition, and men mobility. Participants with longer time since stroke emphasized secondary prevention. Open-text responses identified additional priorities, including social participation, sexuality, and the need for individualized therapy approaches. A small subgroup of caregivers of pediatric stroke survivors prioritized cognition, participation, and self-care. Overall, 75
KW  - Humans
KW  - Male
KW  - Female
KW  - Germany
KW  - Stroke Rehabilitation
KW  - Aged
KW  - Cross-Sectional Studies
KW  - Middle Aged
KW  - Adult
KW  - Surveys and Questionnaires
KW  - Caregivers: psychology
KW  - Aged, 80 and over
KW  - Stroke: psychology
KW  - Internet
KW  - Rehabilitation Research
KW  - Caregivers (Other)
KW  - Germany (Other)
KW  - Lived experience (Other)
KW  - Patient engagement (Other)
KW  - Rehabilitation (Other)
KW  - Research priorities (Other)
KW  - Stroke (Other)
KW  - Survey (Other)
LB  - PUB:(DE-HGF)16
C6  - pmid:41310672
C2  - pmc:PMC12670788
DO  - DOI:10.1186/s12913-025-13824-0
UR  - https://pub.dzne.de/record/282579
ER  -