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@INPROCEEDINGS{Mohr:284339,
author = {Mohr, Wiebke and Raedke, Anika and Afi, Adel and
Edvardsson, David and Mühlichen, Franka and Platen, Moritz
and Roes, Martina and Michalowsky, Bernhard and Hoffmann,
Wolfgang},
title = {{K}ey components of person‐centered care for people with
dementia: {A} systematic review of interventions to design a
patient preference study},
journal = {Alzheimer's and dementia},
volume = {17},
number = {S7},
issn = {1552-5260},
reportid = {DZNE-2026-00114},
pages = {e052134},
year = {2021},
abstract = {Background: To provide Person-Centered Care (PCC) for
People with Dementia (PwD), patient’s stated preferences
must be known. Data about stated care-preferences among PwD
are limited. This study aimed to identify key components of
PCC for PwD by a systematic review of PCC-interventions, to
inform the construction of a decision model for
PwD-preference elicitation.Method: A protocol was registered
with PROSPERO (CRD42021225084). A search of the concepts
Dementia, Person-Centered Care, and Intervention was
performed in PubMed, EMBASE, and Web of Science in Nov2020.
Study selection was based on 2-stage screening against
eligibility criteria, limited to randomized controlled
trials (RCT) and nonrandomized controlled study (NRS)
designs. Risk of bias was assessed with version 2 of the
Cochrane risk-of-bias tool for randomized trials (RoB2) and
the Newcastle-Ottawa Scale (NOS) for nonrandomized studies.
Information about authors, interventions, and outcomes were
extracted and entered into an “Effects Table”. The
identified PCC-interventions were thus synthesized into
intervention categories to form key components of
PCC.Result: Searches identified 1781 records. 19 studies (15
RCT, 4 NRS) were included after screening. The quality of
the studies varied between low to moderate. The individual
interventions covered a wide range of non-pharmacological,
psychosocial offers, oftentimes bundled in multi-component
intervention-sets. Nine intervention categories, i.e. key
components of PCC to inform the construction of a decision
model for PwD-preference elicitation, emerged from data
synthesis: sensory enhancement/relaxation, social contact,
cognitive training, validation and reminiscence, physical
activities, environmental adjustments, caregiver training
and support, care organization and daily living assistance.
Effect measures included i.a. agitation, quality of life,
antipsychotic use, depression, neuropsychiatric symptoms and
behavior, with mixed results concerning the effect of the
PCC interventions. All studies were conducted in nursery
home or hospital settings.Conclusion: Nine intervention
categories as key components of PCC to inform the
construction of a decision model for PwD-preference
elicitation could be identified. As the findings were
limited to nursery home and hospital settings,
community-dwelling PwD and the primary care-setting should
find greater consideration for future investigations on PCC
interventions and patient preference studies.},
month = {Jul},
date = {2021-07-26},
organization = {Alzheimer’s Association
International Conference, Denver (USA),
26 Jul 2021 - 30 Jul 2021},
cin = {AG Hoffmann / AG Roes},
ddc = {610},
cid = {I:(DE-2719)1510600 / I:(DE-2719)1610003},
pnm = {353 - Clinical and Health Care Research (POF4-353)},
pid = {G:(DE-HGF)POF4-353},
typ = {PUB:(DE-HGF)1 / PUB:(DE-HGF)16},
doi = {10.1002/alz.052134},
url = {https://pub.dzne.de/record/284339},
}