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@ARTICLE{Knecht:285345,
      author       = {Knecht, Hanna Lea and Rodriguez, Francisca Saveria},
      title        = {{S}ocial engagement in dementia: {A}ctivities, motivation,
                      support, barriers, and increasing aspects.},
      journal      = {Journal of Alzheimer's disease},
      volume       = {109},
      number       = {4},
      issn         = {1387-2877},
      address      = {Amsterdam},
      publisher    = {IOS Press},
      reportid     = {DZNE-2026-00211},
      pages        = {1874 - 1883},
      year         = {2026},
      abstract     = {BackgroundSocial engagement has been connected to better
                      psychological well-being, improved QoL, and resilience to
                      neuropathological changes. Yet, little is known about the
                      details of social engagement in dementia, which could inform
                      effective interventions.ObjectiveWith this study, we aimed
                      at providing information on social engagement of people with
                      dementia (PWD), given by proxies and PWD.Methods501 people
                      actively involved in dementia care in Germany $(86\%$
                      female; mean age 53.5 years) provided answers to a
                      structured, quantitative survey via online/paper
                      questionnaire, or interview on (i) the types of social
                      activities that PWD engage in, (ii) PWDs' motivation for
                      social engagement, (iii) the support PWD get to engage, (iv)
                      barriers to engage in activities, and (v) ways to increase
                      social engagement. Descriptive analyses as well as overall
                      and pairwise comparisons were performed.ResultsPWD often
                      attend therapies (M = 3.6, SD = 1.0) and sometimes meet-ups
                      with friends (M = 3.0, SD = 1.0), and they remain interested
                      in social engagement (M = 3.5, SD = 1.7). Support was
                      perceived to come mainly from family members $(88.9\%),$
                      partners/spouses $(85.9\%),$ and friends/acquaintances
                      $(59.9\%).$ Most participants perceived activities not being
                      dementia-friendly $(16.1\%)$ and the lack of support
                      $(25.6\%)$ as a major barrier to social engagement. To
                      increase the engagement of PWD, participants suggested that
                      social activities need to be adapted to their abilities
                      $(83.1\%),$ that the community needs to provide inclusive
                      activities $(75.0\%),$ and that specialized care services
                      need to be expanded $(41.4\%).ConclusionsTo$ facilitate and
                      increase social engagement of PWD, support from social
                      contacts and inclusive community behavior could be valuable
                      steps.},
      keywords     = {Humans / Dementia: psychology / Female / Male / Motivation
                      / Middle Aged / Aged / Social Participation: psychology /
                      Social Support / Germany / Surveys and Questionnaires /
                      Quality of Life: psychology / Aged, 80 and over / Adult /
                      Alzheimer's disease (Other) / dementia (Other) /
                      non-pharmacological interventions (Other) / psychosocial
                      interventions (Other)},
      cin          = {AG Rodriguez},
      ddc          = {610},
      cid          = {I:(DE-2719)1510900},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:41568939},
      pmc          = {pmc:PMC12894425},
      doi          = {10.1177/13872877251411341},
      url          = {https://pub.dzne.de/record/285345},
}