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@ARTICLE{Hofbauer:285475,
      author       = {Hofbauer, Lena M. and Knecht, Hanna L. and Rodriguez,
                      Francisca S.},
      title        = {{S}ocial networks of people with dementia: {R}oles of
                      informal and formal contact persons},
      journal      = {Journal of public health},
      volume       = {aop},
      issn         = {2198-1833},
      address      = {Heidelberg},
      publisher    = {Springer},
      reportid     = {DZNE-2026-00252},
      pages        = {na},
      year         = {2025},
      abstract     = {AimStudies on the social environment of people with
                      dementia are largely limited to the closest informal
                      contacts of people with dementia. The aim of this study was
                      to gain a deeper understanding of the roles of both informal
                      and formal contacts.Subject and methodsParticipants (n =
                      405) who replied to items concerning the social networks of
                      people with dementia in the Social Resources in the Living
                      Environment of People with Dementia (SoRe-Dem) Study were
                      included. Participants were asked about the frequency of
                      contact between contact persons and people with dementia,
                      contact persons’ roles in the perceived progression of
                      dementia, and contact persons’ influence on life with
                      dementia. Participants also reported on conversation
                      partners and characteristics of a good support network for
                      people with dementia.ResultsFrequency of contact showed
                      medium-to-high correlations with impact on perceived
                      dementia progression and life with dementia. Partners and
                      other close informal contacts consistently emerged as
                      particularly important, including for conversations. A good
                      support network was described as comprising both formal and
                      informal contacts that take a person-centred approach,
                      enable individualised activities, support the daily routine,
                      aid integration into the community, educate about dementia,
                      and provide emotional support.ConclusionOur findings
                      underscore the critical importance of partners and other
                      close informal contacts in all aspects of the daily lives of
                      people with dementia. Strengthening the quality of
                      contributions by the close network and increasing contact
                      with the broader network could improve the lives of people
                      with dementia.},
      cin          = {AG Rodriguez},
      ddc          = {610},
      cid          = {I:(DE-2719)1510900},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16},
      doi          = {10.1007/s10389-025-02575-1},
      url          = {https://pub.dzne.de/record/285475},
}