TY  - JOUR
AU  - Kowe, Antonia
AU  - Panjaitan, Hentry
AU  - Klein, Olga A
AU  - Boccardi, Marina
AU  - Roes, Martina
AU  - Teupen, Sonja
AU  - Teipel, Stefan
TI  - The impact of participatory dementia research on researchers: A systematic review.
JO  - Dementia
VL  - 21
IS  - 3
SN  - 1741-2684
CY  - Thousand Oaks, Calif. [u.a.]
PB  - Sage
M1  - DZNE-2022-00007
SP  - 1012-1031
PY  - 2022
AB  - Participatory approaches are increasingly required and used in research. In this review, we examined the impact (benefits and disadvantages) of participatory dementia research on researchers as potential key actors to sustainably implement the participatory approach. Our aim was to provide information on how the participatory process could be improved. We conducted a systematic literature review covering the Cochrane Library, PsycNet, PubMed, Scopus, and Google Scholar. The inclusion criteria for publications were as follows: research (1) involving people with dementia as co-researchers, (2) including a description or discussion of the impact of participatory research for researchers, (3) published between 2000 and 2020, and (4) in English. We performed a quality assessment of the included publications. Our final review included nine publications; three categorized as high quality, five as medium quality, and one as low quality. Four of the publications categorized as high or medium quality implemented participation at the level of partnership, and two publications implemented participation at the level of delegated power. The beneficial impact of participatory dementia research on researchers consisted of an increased understanding of people with dementia that widened researchers' theoretical knowledge and perspectives and increased their competence in working with people with dementia. Disadvantages comprised the required additional effort and time as well as the difficulty of establishing a balanced relationship between researchers and co-researchers. Disadvantages may result from the lack of a definition and structure of participatory research and a lack of training on both sides. More well-designed and transparent methods of evaluating participatory research projects are needed.
KW  - Dementia
KW  - Humans
KW  - co-research (Other)
KW  - dementia (Other)
KW  - impact (Other)
KW  - neurocognitive disorders (Other)
KW  - neurodegenerative disorders (Other)
KW  - participatory research (Other)
KW  - patient and public involvement (Other)
KW  - systematic review (Other)
LB  - PUB:(DE-HGF)16
C6  - pmid:35152790
DO  - DOI:10.1177/14713012211067020
UR  - https://pub.dzne.de/record/163172
ER  -