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@ARTICLE{Kowe:163172,
      author       = {Kowe, Antonia and Panjaitan, Hentry and Klein, Olga A and
                      Boccardi, Marina and Roes, Martina and Teupen, Sonja and
                      Teipel, Stefan},
      title        = {{T}he impact of participatory dementia research on
                      researchers: {A} systematic review.},
      journal      = {Dementia},
      volume       = {21},
      number       = {3},
      issn         = {1741-2684},
      address      = {Thousand Oaks, Calif. [u.a.]},
      publisher    = {Sage},
      reportid     = {DZNE-2022-00007},
      pages        = {1012-1031},
      year         = {2022},
      abstract     = {Participatory approaches are increasingly required and used
                      in research. In this review, we examined the impact
                      (benefits and disadvantages) of participatory dementia
                      research on researchers as potential key actors to
                      sustainably implement the participatory approach. Our aim
                      was to provide information on how the participatory process
                      could be improved. We conducted a systematic literature
                      review covering the Cochrane Library, PsycNet, PubMed,
                      Scopus, and Google Scholar. The inclusion criteria for
                      publications were as follows: research (1) involving people
                      with dementia as co-researchers, (2) including a description
                      or discussion of the impact of participatory research for
                      researchers, (3) published between 2000 and 2020, and (4) in
                      English. We performed a quality assessment of the included
                      publications. Our final review included nine publications;
                      three categorized as high quality, five as medium quality,
                      and one as low quality. Four of the publications categorized
                      as high or medium quality implemented participation at the
                      level of partnership, and two publications implemented
                      participation at the level of delegated power. The
                      beneficial impact of participatory dementia research on
                      researchers consisted of an increased understanding of
                      people with dementia that widened researchers' theoretical
                      knowledge and perspectives and increased their competence in
                      working with people with dementia. Disadvantages comprised
                      the required additional effort and time as well as the
                      difficulty of establishing a balanced relationship between
                      researchers and co-researchers. Disadvantages may result
                      from the lack of a definition and structure of participatory
                      research and a lack of training on both sides. More
                      well-designed and transparent methods of evaluating
                      participatory research projects are needed.},
      keywords     = {Dementia / Humans / co-research (Other) / dementia (Other)
                      / impact (Other) / neurocognitive disorders (Other) /
                      neurodegenerative disorders (Other) / participatory research
                      (Other) / patient and public involvement (Other) /
                      systematic review (Other)},
      cin          = {AG Teipel / AG Boccardi / AG Roes / AG Teupen},
      ddc          = {610},
      cid          = {I:(DE-2719)1510100 / I:(DE-2719)5000062 /
                      I:(DE-2719)1610003 / I:(DE-2719)5000076},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:35152790},
      doi          = {10.1177/14713012211067020},
      url          = {https://pub.dzne.de/record/163172},
}