TY  - JOUR
AU  - Mohr, Wiebke
AU  - Rädke, Anika
AU  - Afi, Adel
AU  - Muehlichen, Franka
AU  - Platen, Moritz
AU  - Michalowsky, Bernhard
AU  - Hoffmann, Wolfgang
TI  - Development of a Quantitative Instrument to Elicit Patient Preferences for Person-Centered Dementia Care Stage 1: A Formative Qualitative Study to Identify Patient Relevant Criteria for Experimental Design of an Analytic Hierarchy Process.
JO  - International journal of environmental research and public health
VL  - 19
IS  - 13
SN  - 1660-4601
CY  - Basel
PB  - MDPI AG
M1  - DZNE-2022-01395
SP  - 7629
PY  - 2022
N1  - CC BY
AB  - Background: Person-centered care (PCC) requires knowledge about patient preferences. This formative qualitative study aimed to identify (sub)criteria of PCC for the design of a quantitative, choice-based instrument to elicit patient preferences for person-centered dementia care. Method: Interviews were conducted with n = 2 dementia care managers, n = 10 People living with Dementia (PlwD), and n = 3 caregivers (CGs), which followed a semi-structured interview guide including a card game with PCC criteria identified from the literature. Criteria cards were shown to explore the PlwD's conception. PlwD were asked to rank the cards to identify patient-relevant criteria of PCC. Audios were verbatim-transcribed and analyzed with qualitative content analysis. Card game results were coded on a 10-point-scale, and sums and means for criteria were calculated. Results: Six criteria with two sub-criteria emerged from the analysis; social relationships (indirect contact, direct contact), cognitive training (passive, active), organization of care (decentralized structures and no shared decision making, centralized structures and shared decision making), assistance with daily activities (professional, family member), characteristics of care professionals (empathy, education and work experience) and physical activities (alone, group). Dementia-sensitive wording and balance between comprehensibility vs. completeness of the (sub)criteria emerged as additional themes. Conclusions: Our formative study provides initial data about patient-relevant criteria of PCC to design a quantitative patient preference instrument. Future research may want to consider the balance between (sub)criteria comprehensibility vs. completeness.
KW  - Analytic Hierarchy Process
KW  - Caregivers: psychology
KW  - Dementia: psychology
KW  - Dementia: therapy
KW  - Humans
KW  - Patient Preference
KW  - Patient-Centered Care: methods
KW  - Qualitative Research
KW  - Research Design
KW  - attributes (Other)
KW  - dementia (Other)
KW  - mild cognitive impairment (Other)
KW  - patient participation (Other)
KW  - patient preferences (Other)
KW  - patient-centered care (Other)
KW  - qualitative research (Other)
LB  - PUB:(DE-HGF)16
C6  - pmid:35805286
C2  - pmc:PMC9266267
DO  - DOI:10.3390/ijerph19137629
UR  - https://pub.dzne.de/record/164991
ER  -