Journal Article

DZNE-2022-01395

http://join2-wiki.gsi.de/foswiki/pub/Main/Artwork/join2_logo100x88.png Development of a Quantitative Instrument to Elicit Patient Preferences for Person-Centered Dementia Care Stage 1: A Formative Qualitative Study to Identify Patient Relevant Criteria for Experimental Design of an Analytic Hierarchy Process.

Mohr, W. (First author)DZNE* ; Rädke, A.DZNE* ; Afi, A.DZNE* ; Muehlichen, F.DZNE* ; Platen, M.DZNE* ; Michalowsky, B.DZNE* ; Hoffmann, W. (Last author)DZNE*

2022
MDPI AG Basel

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Please use a persistent id in citations: doi:10.3390/ijerph19137629

Abstract: Background: Person-centered care (PCC) requires knowledge about patient preferences. This formative qualitative study aimed to identify (sub)criteria of PCC for the design of a quantitative, choice-based instrument to elicit patient preferences for person-centered dementia care. Method: Interviews were conducted with n = 2 dementia care managers, n = 10 People living with Dementia (PlwD), and n = 3 caregivers (CGs), which followed a semi-structured interview guide including a card game with PCC criteria identified from the literature. Criteria cards were shown to explore the PlwD's conception. PlwD were asked to rank the cards to identify patient-relevant criteria of PCC. Audios were verbatim-transcribed and analyzed with qualitative content analysis. Card game results were coded on a 10-point-scale, and sums and means for criteria were calculated. Results: Six criteria with two sub-criteria emerged from the analysis; social relationships (indirect contact, direct contact), cognitive training (passive, active), organization of care (decentralized structures and no shared decision making, centralized structures and shared decision making), assistance with daily activities (professional, family member), characteristics of care professionals (empathy, education and work experience) and physical activities (alone, group). Dementia-sensitive wording and balance between comprehensibility vs. completeness of the (sub)criteria emerged as additional themes. Conclusions: Our formative study provides initial data about patient-relevant criteria of PCC to design a quantitative patient preference instrument. Future research may want to consider the balance between (sub)criteria comprehensibility vs. completeness.

Keyword(s): Analytic Hierarchy Process (MeSH) ; Caregivers: psychology (MeSH) ; Dementia: psychology (MeSH) ; Dementia: therapy (MeSH) ; Humans (MeSH) ; Patient Preference (MeSH) ; Patient-Centered Care: methods (MeSH) ; Qualitative Research (MeSH) ; Research Design (MeSH) ; attributes ; dementia ; mild cognitive impairment ; patient participation ; patient preferences ; patient-centered care ; qualitative research

Note: CC BY

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Contributing Institute(s):

1. Translational Health Care Research (AG Hoffmann)

Research Program(s):

1. 353 - Clinical and Health Care Research (POF4-353) (POF4-353)

Appears in the scientific report 2022

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