000281643 001__ 281643
000281643 005__ 20251104102748.0
000281643 0247_ $$2doi$$a10.1186/s12910-025-01290-6
000281643 0247_ $$2pmid$$apmid:41063207
000281643 037__ $$aDZNE-2025-01161
000281643 041__ $$aEnglish
000281643 082__ $$a610
000281643 1001_ $$aAthanasiadi, Ermioni$$b0
000281643 245__ $$aProject DECIDE II: evaluating the efficacy of supported advance care decision making within routine care in dementia: a randomized controlled trial.
000281643 260__ $$aLondon$$bBioMed Central$$c2025
000281643 3367_ $$2DRIVER$$aarticle
000281643 3367_ $$2DataCite$$aOutput Types/Journal article
000281643 3367_ $$0PUB:(DE-HGF)16$$2PUB:(DE-HGF)$$aJournal Article$$bjournal$$mjournal$$s1762161698_20025
000281643 3367_ $$2BibTeX$$aARTICLE
000281643 3367_ $$2ORCID$$aJOURNAL_ARTICLE
000281643 3367_ $$00$$2EndNote$$aJournal Article
000281643 500__ $$aTrial registration: DRKS00036478, 17.04.2025.
000281643 520__ $$aBackgroundDementia is a terminal illness and places significant burden on individuals and their caregivers, especially regarding end-of-life decisions for people with dementia (PwD) who lose their decision-making capacity. Current advance healthcare planning concepts fail to consider the psychological processes of decision making. Supported Advance Care Decision-Making (ACD) is a promising approach aiming to enrich existing advance healthcare planning concepts by integrating empowering support strategies and ensuring the success of empowerment. The study aims at providing a feasible and effective approach to enhance ACD in dementia care practice with the goal to increase PwD’s autonomy in making advance care and end-of-life decisions and to reduce proxy burden. It is embedded within Dementia Care Management (DeCM), a routine care measure specifically designed for PwD who live at home.MethodsThe efficacy of supported ACD incorporated in DeCM routine care will be investigated with a single-blind randomized controlled trial. The primary endpoints are the prevalence and validity of advance healthcare planning documents (advance directives or other) and proxy burden at pre vs. post measurement. The secondary endpoints are decisional conflict, patient autonomy, and patient-proxy congruence in preferences.DiscussionDepending on the results, supported ACD shall be added to the curriculum of DeCM to further increase its effectiveness.
000281643 536__ $$0G:(DE-HGF)POF4-353$$a353 - Clinical and Health Care Research (POF4-353)$$cPOF4-353$$fPOF IV$$x0
000281643 588__ $$aDataset connected to CrossRef, PubMed, , Journals: pub.dzne.de
000281643 650_7 $$2Other$$aDementia care
000281643 650_7 $$2Other$$aIntervention
000281643 650_7 $$2Other$$aProxy burden
000281643 650_7 $$2Other$$aSupported advance care decision-making
000281643 7001_ $$0P:(DE-2719)2290613$$aThyrian, Jochen René$$b1$$udzne
000281643 7001_ $$aFlorack, Janina$$b2
000281643 7001_ $$aTheile-Schürholz, Anna$$b3
000281643 7001_ $$aKarneboge, Jonas$$b4
000281643 7001_ $$aMüller, Tanja$$b5
000281643 7001_ $$aKleinke, Kristian$$b6
000281643 7001_ $$aKremer, Stefanie$$b7
000281643 7001_ $$aBoes, Charlotte$$b8
000281643 7001_ $$aBöhm, Helene$$b9
000281643 7001_ $$aHerder-Peyrounette, Anja$$b10
000281643 7001_ $$aKremer, Manuela$$b11
000281643 7001_ $$aSander, Celina$$b12
000281643 7001_ $$aMüller-Späth, Ronja$$b13
000281643 7001_ $$aUllrich, Heiko$$b14
000281643 7001_ $$0P:(DE-2719)9000494$$aBoekholt, Melanie$$b15$$udzne
000281643 7001_ $$aHassenzahl, Marc$$b16
000281643 7001_ $$aAlbers, Ruben$$b17
000281643 7001_ $$aForstmeier, Simon$$b18
000281643 7001_ $$aSchaper, Philipp$$b19
000281643 7001_ $$aHaberstroh, Julia$$b20
000281643 773__ $$0PERI:(DE-600)2041552-7$$a10.1186/s12910-025-01290-6$$gVol. 26, no. 1, p. 124$$n1$$p124$$tBMC medical ethics$$v26$$x1472-6939$$y2025
000281643 8564_ $$uhttps://pub.dzne.de/record/281643/files/DZNE-2025-01161%20SUP1.pdf
000281643 8564_ $$uhttps://pub.dzne.de/record/281643/files/DZNE-2025-01161%20SUP2.pdf
000281643 8564_ $$uhttps://pub.dzne.de/record/281643/files/DZNE-2025-01161%20SUP3.pdf
000281643 8564_ $$uhttps://pub.dzne.de/record/281643/files/DZNE-2025-01161.pdf$$yOpenAccess
000281643 8564_ $$uhttps://pub.dzne.de/record/281643/files/DZNE-2025-01161%20SUP1.pdf?subformat=pdfa$$xpdfa
000281643 8564_ $$uhttps://pub.dzne.de/record/281643/files/DZNE-2025-01161%20SUP2.pdf?subformat=pdfa$$xpdfa
000281643 8564_ $$uhttps://pub.dzne.de/record/281643/files/DZNE-2025-01161%20SUP3.pdf?subformat=pdfa$$xpdfa
000281643 8564_ $$uhttps://pub.dzne.de/record/281643/files/DZNE-2025-01161.pdf?subformat=pdfa$$xpdfa$$yOpenAccess
000281643 909CO $$ooai:pub.dzne.de:281643$$popenaire$$popen_access$$pVDB$$pdriver$$pdnbdelivery
000281643 9101_ $$0I:(DE-588)1065079516$$6P:(DE-2719)2290613$$aDeutsches Zentrum für Neurodegenerative Erkrankungen$$b1$$kDZNE
000281643 9101_ $$0I:(DE-588)1065079516$$6P:(DE-2719)9000494$$aDeutsches Zentrum für Neurodegenerative Erkrankungen$$b15$$kDZNE
000281643 9131_ $$0G:(DE-HGF)POF4-353$$1G:(DE-HGF)POF4-350$$2G:(DE-HGF)POF4-300$$3G:(DE-HGF)POF4$$4G:(DE-HGF)POF$$aDE-HGF$$bGesundheit$$lNeurodegenerative Diseases$$vClinical and Health Care Research$$x0
000281643 9141_ $$y2025
000281643 915__ $$0StatID:(DE-HGF)0200$$2StatID$$aDBCoverage$$bSCOPUS$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)0160$$2StatID$$aDBCoverage$$bEssential Science Indicators$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)0130$$2StatID$$aDBCoverage$$bSocial Sciences Citation Index$$d2024-12-05
000281643 915__ $$0LIC:(DE-HGF)CCBY4$$2HGFVOC$$aCreative Commons Attribution CC BY 4.0
000281643 915__ $$0StatID:(DE-HGF)0100$$2StatID$$aJCR$$bBMC MED ETHICS : 2022$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)1180$$2StatID$$aDBCoverage$$bCurrent Contents - Social and Behavioral Sciences$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)0501$$2StatID$$aDBCoverage$$bDOAJ Seal$$d2024-04-10T15:34:12Z
000281643 915__ $$0StatID:(DE-HGF)0500$$2StatID$$aDBCoverage$$bDOAJ$$d2024-04-10T15:34:12Z
000281643 915__ $$0StatID:(DE-HGF)0113$$2StatID$$aWoS$$bScience Citation Index Expanded$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)0700$$2StatID$$aFees$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)0150$$2StatID$$aDBCoverage$$bWeb of Science Core Collection$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)9900$$2StatID$$aIF < 5$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)0510$$2StatID$$aOpenAccess
000281643 915__ $$0StatID:(DE-HGF)0030$$2StatID$$aPeer Review$$bDOAJ : Open peer review$$d2024-04-10T15:34:12Z
000281643 915__ $$0StatID:(DE-HGF)0561$$2StatID$$aArticle Processing Charges$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)0300$$2StatID$$aDBCoverage$$bMedline$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)1110$$2StatID$$aDBCoverage$$bCurrent Contents - Clinical Medicine$$d2024-12-05
000281643 915__ $$0StatID:(DE-HGF)0199$$2StatID$$aDBCoverage$$bClarivate Analytics Master Journal List$$d2024-12-05
000281643 9201_ $$0I:(DE-2719)1510800$$kAG Thyrian$$lInterventional Health Care Research (IHCR)$$x0
000281643 980__ $$ajournal
000281643 980__ $$aVDB
000281643 980__ $$aUNRESTRICTED
000281643 980__ $$aI:(DE-2719)1510800
000281643 9801_ $$aFullTexts