Journal Article

DZNE-2025-01161

http://join2-wiki.gsi.de/foswiki/pub/Main/Artwork/join2_logo100x88.png Project DECIDE II: evaluating the efficacy of supported advance care decision making within routine care in dementia: a randomized controlled trial.

Athanasiadi, E. ; Thyrian, J. R.DZNE* ; Florack, J. ; Theile-Schürholz, A. ; Karneboge, J. ; Müller, T. ; Kleinke, K. ; Kremer, S. ; Boes, C. ; Böhm, H. ; Herder-Peyrounette, A. ; Kremer, M. ; Sander, C. ; Müller-Späth, R. ; Ullrich, H. ; Boekholt, M.DZNE* ; Hassenzahl, M. ; Albers, R. ; Forstmeier, S. ; Schaper, P. ; Haberstroh, J.

2025
BioMed Central London

This record in other databases:    

Please use a persistent id in citations: doi:10.1186/s12910-025-01290-6

Abstract: BackgroundDementia is a terminal illness and places significant burden on individuals and their caregivers, especially regarding end-of-life decisions for people with dementia (PwD) who lose their decision-making capacity. Current advance healthcare planning concepts fail to consider the psychological processes of decision making. Supported Advance Care Decision-Making (ACD) is a promising approach aiming to enrich existing advance healthcare planning concepts by integrating empowering support strategies and ensuring the success of empowerment. The study aims at providing a feasible and effective approach to enhance ACD in dementia care practice with the goal to increase PwD’s autonomy in making advance care and end-of-life decisions and to reduce proxy burden. It is embedded within Dementia Care Management (DeCM), a routine care measure specifically designed for PwD who live at home.MethodsThe efficacy of supported ACD incorporated in DeCM routine care will be investigated with a single-blind randomized controlled trial. The primary endpoints are the prevalence and validity of advance healthcare planning documents (advance directives or other) and proxy burden at pre vs. post measurement. The secondary endpoints are decisional conflict, patient autonomy, and patient-proxy congruence in preferences.DiscussionDepending on the results, supported ACD shall be added to the curriculum of DeCM to further increase its effectiveness.

Keyword(s): Dementia care ; Intervention ; Proxy burden ; Supported advance care decision-making

Note: Trial registration: DRKS00036478, 17.04.2025.

---

Contributing Institute(s):

1. Interventional Health Care Research (IHCR) (AG Thyrian)

Research Program(s):

1. 353 - Clinical and Health Care Research (POF4-353) (POF4-353)

Appears in the scientific report 2025

---

Database coverage:
; ; ; ; Article Processing Charges ; Clarivate Analytics Master Journal List ; Current Contents - Clinical Medicine ; Current Contents - Social and Behavioral Sciences ; DOAJ Seal ; Essential Science Indicators ; Fees ; IF < 5 ; JCR ; SCOPUS ; Science Citation Index Expanded ; Social Sciences Citation Index ; Web of Science Core Collection

---