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@ARTICLE{Athanasiadi:281643,
      author       = {Athanasiadi, Ermioni and Thyrian, Jochen René and Florack,
                      Janina and Theile-Schürholz, Anna and Karneboge, Jonas and
                      Müller, Tanja and Kleinke, Kristian and Kremer, Stefanie
                      and Boes, Charlotte and Böhm, Helene and
                      Herder-Peyrounette, Anja and Kremer, Manuela and Sander,
                      Celina and Müller-Späth, Ronja and Ullrich, Heiko and
                      Boekholt, Melanie and Hassenzahl, Marc and Albers, Ruben and
                      Forstmeier, Simon and Schaper, Philipp and Haberstroh,
                      Julia},
      title        = {{P}roject {DECIDE} {II}: evaluating the efficacy of
                      supported advance care decision making within routine care
                      in dementia: a randomized controlled trial.},
      journal      = {BMC medical ethics},
      volume       = {26},
      number       = {1},
      issn         = {1472-6939},
      address      = {London},
      publisher    = {BioMed Central},
      reportid     = {DZNE-2025-01161},
      pages        = {124},
      year         = {2025},
      note         = {Trial registration: DRKS00036478, 17.04.2025.},
      abstract     = {BackgroundDementia is a terminal illness and places
                      significant burden on individuals and their caregivers,
                      especially regarding end-of-life decisions for people with
                      dementia (PwD) who lose their decision-making capacity.
                      Current advance healthcare planning concepts fail to
                      consider the psychological processes of decision making.
                      Supported Advance Care Decision-Making (ACD) is a promising
                      approach aiming to enrich existing advance healthcare
                      planning concepts by integrating empowering support
                      strategies and ensuring the success of empowerment. The
                      study aims at providing a feasible and effective approach to
                      enhance ACD in dementia care practice with the goal to
                      increase PwD’s autonomy in making advance care and
                      end-of-life decisions and to reduce proxy burden. It is
                      embedded within Dementia Care Management (DeCM), a routine
                      care measure specifically designed for PwD who live at
                      home.MethodsThe efficacy of supported ACD incorporated in
                      DeCM routine care will be investigated with a single-blind
                      randomized controlled trial. The primary endpoints are the
                      prevalence and validity of advance healthcare planning
                      documents (advance directives or other) and proxy burden at
                      pre vs. post measurement. The secondary endpoints are
                      decisional conflict, patient autonomy, and patient-proxy
                      congruence in preferences.DiscussionDepending on the
                      results, supported ACD shall be added to the curriculum of
                      DeCM to further increase its effectiveness.},
      keywords     = {Dementia care (Other) / Intervention (Other) / Proxy burden
                      (Other) / Supported advance care decision-making (Other)},
      cin          = {AG Thyrian},
      ddc          = {610},
      cid          = {I:(DE-2719)1510800},
      pnm          = {353 - Clinical and Health Care Research (POF4-353)},
      pid          = {G:(DE-HGF)POF4-353},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:41063207},
      doi          = {10.1186/s12910-025-01290-6},
      url          = {https://pub.dzne.de/record/281643},
}