Journal Article

DZNE-2020-03652

http://join2-wiki.gsi.de/foswiki/pub/Main/Artwork/join2_logo100x88.png Measuring the quality of life in mild to very severe dementia: testing the inter-rater and intra-rater reliability of the German version of the QUALIDEM.

Dichter, M. (First author)DZNE* ; Schwab, C. G. G.DZNE* ; Meyer, G. ; Bartholomeyczik, S. ; Dortmann, O.DZNE* ; Halek, M. (Last author)DZNE*

2014
Cambridge Univ. Press Cambridge

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Please use a persistent id in citations: doi:10.1017/S1041610214000052

Abstract: Quality of life (Qol) is an increasingly used outcome measure in dementia research. The QUALIDEM is a dementia-specific and proxy-rated Qol instrument. We aimed to determine the inter-rater and intra-rater reliability in residents with dementia in German nursing homes.The QUALIDEM consists of nine subscales that were applied to a sample of 108 people with mild to severe dementia and six consecutive subscales that were applied to a sample of 53 people with very severe dementia. The proxy raters were 49 registered nurses and nursing assistants. Inter-rater and intra-rater reliability scores were calculated on the subscale and item level.None of the QUALIDEM subscales showed strong inter-rater reliability based on the single-measure Intra-Class Correlation Coefficient (ICC) for absolute agreement ≥ 0.70. Based on the average-measure ICC for four raters, eight subscales for people with mild to severe dementia (care relationship, positive affect, negative affect, restless tense behavior, social relations, social isolation, feeling at home and having something to do) and five subscales for very severe dementia (care relationship, negative affect, restless tense behavior, social relations and social isolation) yielded a strong inter-rater agreement (ICC: 0.72-0.86). All of the QUALIDEM subscales, regardless of dementia severity, showed strong intra-rater agreement. The ICC values ranged between 0.70 and 0.79 for people with mild to severe dementia and between 0.75 and 0.87 for people with very severe dementia.This study demonstrated insufficient inter-rater reliability and sufficient intra-rater reliability for all subscales of both versions of the German QUALIDEM. The degree of inter-rater reliability can be improved by collaborative Qol rating by more than one nurse. The development of a measurement manual with accurate item definitions and a standardized education program for proxy raters is recommended.

Keyword(s): Aged (MeSH) ; Consumer Behavior: statistics & numerical data (MeSH) ; Dementia: diagnosis (MeSH) ; Dementia: epidemiology (MeSH) ; Dementia: psychology (MeSH) ; Dementia: therapy (MeSH) ; Female (MeSH) ; Geriatric Assessment: methods (MeSH) ; Germany: epidemiology (MeSH) ; Homes for the Aged: standards (MeSH) ; Humans (MeSH) ; Long-Term Care: methods (MeSH) ; Long-Term Care: psychology (MeSH) ; Long-Term Care: standards (MeSH) ; Male (MeSH) ; Nursing Homes: standards (MeSH) ; Outcome Assessment, Health Care (MeSH) ; Proxy: psychology (MeSH) ; Proxy: statistics & numerical data (MeSH) ; Psychometrics: methods (MeSH) ; Quality of Life (MeSH) ; Reproducibility of Results (MeSH) ; Severity of Illness Index (MeSH) ; Surveys and Questionnaires (MeSH)

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Contributing Institute(s):

1. Care Interventions (AG Halek)
2. Implementation Science & Person-Centered Dementia Care (AG Roes)

Research Program(s):

1. 344 - Clinical and Health Care Research (POF3-344) (POF3-344)

Appears in the scientific report 2014

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Database coverage:
; Allianz-Lizenz / DFG ; Clarivate Analytics Master Journal List ; Current Contents - Clinical Medicine ; Current Contents - Social and Behavioral Sciences ; IF < 5 ; JCR ; Nationallizenz ; SCOPUS ; Science Citation Index Expanded ; Social Sciences Citation Index ; Web of Science Core Collection

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