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| Home > Publications Database > 301.4 An empirical based model of dementia specific quality of life-results of a meta-synthesis of qualitative studies |
| Home > Publications Database > 301.4 An empirical based model of dementia specific quality of life-results of a meta-synthesis of qualitative studies |
| Abstract/Journal Article | DZNE-2020-00910 |
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2014
Abstract: AIMS: Development of a dementia-specific quality of life modelbased on a meta-synthesis of qualitative research studies exploringthe perspectives of people with dementia on quality of life (QOL).METHODS:Themeta-synthesis(PROSPERO2013:CRD42013005014) followed four methodological steps: (a) comprehen-sive search in relevant databases (Medline, CINAHL, PsychINFO,EMBASE) without time limit including forward and backwardcitation tracking (Google Scholar, Web of Science, SCOPUS),(b) data extraction using the template form of the QualitativeAssessment Review Instrument, (c) Quality appraisal using formalcriteria from the Critical Appraisal Skills Programme, (d) synthesisof findings based on principles and procedures of grounded theory.In particular, the constant comparative method leads the coding,identification of categories and synthesis. Two independentreviewers carried out all four methodological steps. RESULTS:The comprehensive search and removal of duplicates revealed2.716 abstracts; 58 full texts were screened for eligibility. Ninestudies from seven countries, published between 1996 and 2011,were included. The papers comprised reports on the perspectives of308 people with dementia in all stages of dementia on their QOL.The studies were based on narrative and semi-structured interviewsand focus group interviews, the latter partly supported by musicand art therapy.A total of 14 different QOL domains were identi-fied: family, social contact and relationships, self-determination andfreedom, living environment, positive emotions, negative emotions,privacy, security, self-esteem, health, spirituality, care relationship,pleasant activities and future prospects. Presently, the relationshipbetween the domains is analyzed aimed to develop the final QOL-model. The results will be available until May 2014. CONCLU-SIONS: The meta-synthesis will contribute to the theoreticaldevelopment of the concept of QOL of people with dementia. Theresulting dementia-specific model will provide a framework for thedevelopment, adaption and validation of dementia-specific QOLmeasurements and development of psychosocial interventions
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