Journal Article

DZNE-2026-00314

http://join2-wiki.gsi.de/foswiki/pub/Main/Artwork/join2_logo100x88.png Becoming a coresearcher in dementia care research: a mixed-methods study protocol for evaluation of the Dementia Leaders programme.

Felding, S. A. (First author)DZNE* ; Altinok, K.DZNE* ; Rommerskirch-Manietta, M.DZNE* ; Hoffmann-Hoffrichter, A. L.DZNE* ; Manietta, C.DZNE* ; Roes, M. (Last author)DZNE*

2026
BMJ Publishing Group London

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Please use a persistent id in citations: doi:10.1136/bmjopen-2025-110093

Abstract: The Dementia Leaders programme aims to enhance active public involvement in dementia research by developing a programme for potential coresearchers that includes the perspectives of individuals who experience the disease directly, such as people living with dementia, their informal caregivers and healthcare professionals. The planned study will evaluate this programme (which includes workshops, webinars and online meetings) with a focus on, for example, the content and structure of the programme as well as the experience of the participants regarding their active involvement.A mixed-methods design will be used to evaluate the Dementia Leaders programme. For this purpose, we will conduct semistructured interviews with the participants in the programme. Additionally, we will conduct an online survey after each webinar associated with the programme. The data will be analysed using qualitative content analysis (for the interview data and the open-ended questions included in the online survey) and by employing descriptive statistical methods (for the closed-ended questions of the online survey). Finally, the results obtained via both analytical methods will be synthesised, interpreted and discussed.This study received approval from the ethics committee of the German Society of Nursing Science (Number 25-014). The results will be presented and published alongside the coresearchers at (inter)national conferences and in journals targeting practitioners, caregivers and people living with dementia as well as in peer-reviewed journals.

Keyword(s): Humans (MeSH) ; Dementia: therapy (MeSH) ; Caregivers (MeSH) ; Research Design (MeSH) ; Program Evaluation (MeSH) ; Qualitative Research (MeSH) ; Surveys and Questionnaires (MeSH) ; Interviews as Topic (MeSH) ; Leadership (MeSH) ; Germany (MeSH) ; Community-Based Participatory Research ; Dementia ; EDUCATION & TRAINING (see Medical Education & Training)

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Contributing Institute(s):

1. Implementation Science & Person-Centered Dementia Care (AG Roes)
2. Care Structures (AG Holle)

Research Program(s):

1. 353 - Clinical and Health Care Research (POF4-353) (POF4-353)

Appears in the scientific report 2026

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Database coverage:
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