Journal Article

DZNE-2026-00976

http://join2-wiki.gsi.de/foswiki/pub/Main/Artwork/join2_logo100x88.png Positioning equity at the core of European dementia research: a pan-European co-produced perspective from the PANEUCARE consortium.

Cardona, M. I. (First author)DZNE* ; Giebel, C. ; Scerri, A. ; Innes, A. ; Mimica, N. ; Kučuk, O. ; Nielsen, T. R. ; Macijauskienė, J. ; Bartkevičiūtė, B. ; Smits, C. ; Geoghegan, C. ; Moradi-Bachiller, S. ; Rokstad, A. M. ; Holmerova, I. ; Trypka, E. ; Egervári, Á. ; Sfetcu, R. ; Taneska, M. ; Hegedűs, P. ; Shevchenko, I. ; Iloski, S. ; Chatzikostopoulos, T. ; Thyrian, J. R. (Last author)DZNE*

2026
Frontiers Media Lausanne

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Please use a persistent id in citations: doi:10.3389/fmed.2026.1828363

Abstract: Dementia care across Europe is characterized by substantial regional disparities in research participation, funding, and care practices, which challenge the development of equitable and inclusive research agendas. The PANEUCARE consortium adopted a pan-European, co-produced approach that integrates professional expertise with the perspectives of people living with dementia and caregivers to identify priorities for a more equitable dementia research landscape. Insights were generated through two workshops with dementia professionals and consultation groups involving people living with dementia and caregivers, followed by deliberative synthesis to explore common challenges, regional barriers, and shared research priorities. Participants highlighted persistent issues including workforce shortages, delayed diagnosis, fragmented care pathways, caregiver burden, and the underrepresentation of Southern and Eastern European contexts in research. At the same time, examples of local innovation, such as community-based services, cross-sector collaboration, and the use of digital tools, demonstrated context-specific resilience and opportunities for cross-regional learning. Priority areas for future research included strengthening cross-regional collaboration, addressing workforce development, improving culturally sensitive and post-diagnostic care, enhancing support for caregivers, and promoting more inclusive participation in research. These insights informed the development of the EQUITABLE framework (Equity, Quality, Urgency, Involvement, Transdisciplinary collaboration, Adaptability, Budget-consciousness, Linguistic and cultural sensitivity, and Engagement), which provides actionable guidance for designing inclusive and context-sensitive dementia research across Europe. By bringing together professional expertise and lived experience, PANEUCARE highlights how Europe's diversity in dementia care can be leveraged as a resource for shared learning and policy development, supporting a more equitable, sustainable, and responsive European dementia research landscape.

Keyword(s): European public health ; co-production ; dementia care ; equity ; pan-European research

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Contributing Institute(s):

1. Interventional Health Care Research (IHCR) (AG Thyrian)

Research Program(s):

1. 353 - Clinical and Health Care Research (POF4-353) (POF4-353)

Appears in the scientific report 2026

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Database coverage:
; ; ; ; Article Processing Charges ; Clarivate Analytics Master Journal List ; Current Contents - Clinical Medicine ; DOAJ Seal ; Essential Science Indicators ; Fees ; IF < 5 ; JCR ; PubMed Central ; SCOPUS ; Science Citation Index Expanded ; Web of Science Core Collection

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