Journal Article

DZNE-2023-00392

http://join2-wiki.gsi.de/foswiki/pub/Main/Artwork/join2_logo100x88.png Scale for the Assessment and Rating of Ataxia (SARA): Development of a Training Tool and Certification Program.

Grobe-Einsler, M. (First author)DZNE* ; Taheri Amin, A.DZNE* ; Faber, J.DZNE* ; Völkel, H.DZNE* ; Synofzik, M.DZNE* ; Klockgether, T. (Last author)DZNE*

2024
Dunitz London

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Please use a persistent id in citations: doi:10.1007/s12311-023-01543-3

Abstract: Monitoring of disease severity is of great importance for treatment and management of clinical trials. The Scale for Assessment and Rating of Ataxia (SARA) is a frequently used, short and easily applicable clinical scale used to assess the severity of ataxia. The objective of our study was to develop a training and certification tool for the SARA. SARA scores were recorded according to a standardized protocol and rated by three clinical experts in consensus. Four hundred thirty-eight videos of 67 patients were included in the SARA training tool. The tutorial section demonstrates a complete SARA examination on a healthy control. In the training section, users can compare their ratings to consensus ratings and access a video library covering the complete SARA range. The tool also includes a section that allows optional certification. The SARA training tool provides comprehensive and standardized training material and certification to reduce variability in applying the SARA. Standardization aims to improve the quality of patient care and research in ataxia.

Keyword(s): Humans (MeSH) ; Ataxia: diagnosis (MeSH) ; Ataxia: therapy (MeSH) ; Certification: standards (MeSH) ; Severity of Illness Index (MeSH) ; Female (MeSH) ; Male (MeSH) ; Adult (MeSH) ; Middle Aged (MeSH) ; Ataxia ; Certification ; SARA ; Training tool

Note: CC BY

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Contributing Institute(s):

1. Patient Studies (AG Klockgether)
2. Clinical Research Platform (CRP) (AG Spottke)
3. Patient Studies Bonn (Patient Studies Bonn)
4. Clinical Research Platform (CRP) (Clinical Research Platform (CRP))
5. Parkinson Genetics (AG Gasser)

Research Program(s):

1. 353 - Clinical and Health Care Research (POF4-353) (POF4-353)

Appears in the scientific report 2023

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Database coverage:
; ; ; Clarivate Analytics Master Journal List ; DEAL Springer ; Ebsco Academic Search ; Essential Science Indicators ; IF < 5 ; JCR ; SCOPUS ; Science Citation Index Expanded ; Web of Science Core Collection

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